Breath of Hope's Earth Day Tote - Logo

Can be ordered here.

S. Resolution 204 - National Congenital Diaphragmatic Hernia Awareness Day - March 31, 2010

Success is not measured by what you accomplish, but by the opposition you have encountered, and the courage with which you have maintained the struggle against overwhelming odds.” 

- Orison Swett Marden

The Senate passed S. Resolution 204 for March 31, 2010 to be Congenital Diaphragmatic Hernia Awareness Day please click here to see this - this was done unanimously on April 14, 2010. Breath of Hope and other organizations have faced fierce opposition but this is proof that good prevails.

Since we started this campaign in 2007, there have been six entities that have started conducting medical research to benefit Congenital Diaphragmatic Hernia. Awareness leads to medical research that will lead to answers and treatments.

Peyton's Promise - May 15 - 5k Run/2k Walk - Pennsylvania

5K Run / 2K Walk

Saturday, May 15 - Sea Isle City

all profits donated to 

Children's Hospital of Philadelphia to benefit CDH

 

Please click here to go to the website and register or donate.

Please click here to read a wonderful article about this event - 2nd year!

Breath of Hope's Expectant - New Parent Package

Since January 2007, Breath of Hope has been giving expectant/new parents of congenital diaphragmatic hernia infants packages. They have always included receiving blankets (2) acceptable by all NICUs and a hand print kit. They also include our Expectant Parent Booklet, NICU Equipment Booklet, NICU Terms Brochure and In the Event of an Angel (which is delivered in a sealed envelope - to be opened in the event of an angel).

We also now include My NICU Baby Book, ribbons, wristbands and Infant Mittens.

Over 200 of these packages have been distributed some as far as Taipei, China to Australia and Canada and all through the United States.

Robert Wood Johnson Foundation Award Winner to Research to benefit Congenital Diaphragmatic Hernia

Sean E. McLean, MD, an assistant professor at UNC, was selected as a 2010-2014 Harold Amos Medical Faculty Development Program scholar. The Harold Amos Medical Faculty Development Program is a national program of the Robert Wood Johnson Foundation. 

Dr. McLean plans to use the four year grant to support labratory research on how smooth muscle  cell phenotypes contribute to pulmonary hypertension utilizing mouse models for congenital diaphragmatic hernia (CDH).  Please read here for the full article.  Thank you Jean for this great find!

$5,000 GoodSearch Giveaway - Three Days Only!

GoodSearch will donate a $1 for every toolbar that is downloaded between April 6th at 9am EST and April 9th at 9am EST up to $5,000!! Please download the toolbar right now by following this link - (see below for instructions on how to create a link to your customized toolbar download page)

Our new toolbar is free to download and allows you to raise money for our cause CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS---Every breath they take is our ~BREATH OF HOPE~ every time you search or shop online! Once added to IE or Firefox, each time you shop at more than 1,300 stores (from Amazon to Zazzle!) a percentage of your purchase will automatically be donated to CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS---Every breath they take is our ~BREATH OF HOPE~ at no cost to you (and you may even save money as the toolbar provides coupons and deals as well!). The toolbar also has a search box and each time you search the Internet, about a penny is donated to CONGENITAL DIAPHRAGMATIC HERNIA AWARENESS---Every breath they take is our ~BREATH OF HOPE~ http://www.breathofhopeinc.com/

Please hurry and do this now so that we can earn the $1 bonus per toolbar!

And, please pass this along to all of your friends. The two minutes it takes to add this toolbar to your browser can make a lifetime of difference for our cause!

Get the toolbar NOW! http://www.goodsearch.com/toolbar/bre...

Please note: All funds raised through GoodSearch to Breath of Hope are redirected to Medical Research that will benefit congenital diaphragmatic hernia!

Happy Easter from Breath of Hope

Easter is the demonstration of God that life is essentially spiritual and timeless. - Charles M. Crowe

Easter tells us that life is to be interpreted not simply in terms of things but in terms of ideals. - Charles M. Crowe

I am the resurrection and the life: he that believeth in me, though he were dead, yet shall he live. And whoever liveth and believeth in me shall never die. - Bible: John, 11. 25

Do not abandon yourselves to despair. We are the Easter people and hallelujah is our song. - Pope John Paul II

What to Do for Congenital Diaphragmatic Hernia Awareness Day...

Have no plans for Congenital Diaphragmatic Hernia Day – other than wearing turquoise?  Here are some simple things that you can do:

• Have a candle lighting ceremony – light your candle(s) at 7 PM your time and extinguish them at 8 PM just as you would for International Children’s Memorial Day or Pregnancy and Infant Loss Awareness Day.  Send thoughts or say a prayer for all those affected by CDH.

• Tell one person about congenital diaphragmatic hernia.
• Donate blood, if you can.
• Print off cards with the description or definition of CDH and hand them out randomly – better yet –   do random acts of kindness and hand the card to those you do your good deed for!

• Post on your blog, carepage or website about Congenital Diaphragmatic Hernia Awareness Day.  Better – turn it turquoise if you can or put one of the Turquoise Awareness Ribbons on your site!

•  Turn your profile on Facebook or anywhere else Turquoise for the day – or use one of our ribbons!

Have fun!  This should be a day of joy – it is a day we can celebrate awareness of this birth defect – though we always spread the word – this day is something that has been recognized by 34 Governors and States and will soon be recognized by the United States!

We are not stopping this effort – our goal has always been and will always be to have all 50 States Issue Proclamations and for countries to also issue Proclamations too. 

Pennsylvania Proclamation for March 31, 2010

The State of Pennsylvania...

Has issued a proclamation for March 31, 2010 to be Congenital Diaphragmatic Hernia Awareness Day.  Thank you Governor Rendell and Stephanie, Porter's Mom!