Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective

KSDK.com News Report of Saint Louis Children's Hospital Press Conference

Tuesday, February 19, 2008

Frederick News Post - Article on Congenital Diaphragmatic Hernia Awareness Day & Adorable Jack


There will be a blood drive in honor of Jack and all ECMO Patients and there is a wonderful article published today on Congenital Diaphragmatic Hernia and Awareness Day! Jack is spreading awareness and looking very handsome doing so!


Saturday, February 16, 2008

Friday, February 15, 2008

Congenital Diaphragmatic Hernia Awareness Month of March in Iowa


Governor Chet Culver, Terri Helmick, Director of Breath of Hope and Ava are pictured with Iowa’s Proclamation, Congenital Diaphragmatic Hernia Awareness Month of March 2008.

Thank you Terri for writing your letter and being an amazing Awareness Advocate! Governor Culver, thank you for recognizing this birth defect, the need for awareness in Iowa and taking time to pose for a wonderful picture. And Thank you Ava for being the beautiful miracle you are!

Sunday, February 10, 2008

I WEAR TURQUOISE FOR.....


In an effort to give choice we added a NEW shirt design to our Breath of Hope Cafepress store! I Wear Turquoise for ....
Commission earned on this merchandise is only $1 per item.
Get your Turquoise for March 31, 2008 - the FIRST EVER
Congenital Diaphragmatic Hernia Awareness TM Day!

Sunday, February 3, 2008

Making A Difference - www.keepinghopestrong.org

“One person can make a difference and every person should try.” John F. Kennedy
Keeping Hope Strong
February 9th, 2008,
PURCHASE TICKETS IN ADVANCE For $25.00
To automatically be entered into the grand prize drawing for a weekend getaway!
Tickets available at:
JB Quimby's Public House3529 Winton Rd. South, Rochester NY 585.272.9780
&
Donnelly's Public House1 Water Street Fairport, NY 377-5450
Or contact Despina Mitchell at 585-703-6088 or despina@keepinghopestrong.org
A benefit in Honor of Mason Mitchell:CDH (Congenital Diaphragmatic Hernia) / ECMO (Extra Corporeal Membrane Oxygenation) Survivor & NICU Graduate.

Please come join us - 4:00PM till...JB Quimby's Public House
3529 Winton Rd. South,
Rochester NY
585.272.9780(located in the Win-Jeff Plaza)
Live Auction(7:00pm)
Raffles(all night!)
Live Music
Eat, Drink and Be Merry!
JB Quimby's is donating a portion of food and drink sales during this event!
For more information contact Despina Mitchell at: despina@keepinghopestrong.org or 585.703.6088
A Rochester CDH (Congenital Diaphragmatic Hernia) & Golisano Children's Hospital at Strong benefit event held by Keeping Hope Strong.

Thursday, January 24, 2008

Heart of Gold Winner - Princess Projects

Terri, Ava's Mommy who was featured in the Iowa Paper Article about congenital diaphragmatic hernia, Congenital Diaphragmatic Hernia Awareness Day and is helping Breath of Hope spread awareness was sought out by Princess Projects.

Terri was awarded the Heart of Gold Award!
Princess Projects Mission:
Our Mission ~~*~Giving Challenged Girls the Attitude of a Princess~*~Our goal is to honor girls who face challenges - With a Princess Party -Complete with their own tiara
What a wonderful reward for spreading Awareness!

Wednesday, January 23, 2008

Mason is our Miracle

And yet another Newspaper Article - on the front page in Rochester, New York!
Webster Post by Tori Uthe
Despina - this is wonderful and Mason is beautiful!
Thank you Tori Uthe for reporting on this Miracle!

Tuesday, January 22, 2008

A Cause for Caden


Huntsville, Alabama Times Article by Steve Doyle




And the Cause? What else?


Congenital Diaphragmatic Hernia AwarenessTM!


Jennifer this was absolutely awesome and Steve Doyle - you wrote a fantastic article!

Sunday, January 20, 2008

Keeping Hope Strong - Update - Rochester, New York

If anyone is in this area, knows someone that may be in the area of Rochester, New York please consider going to this Event. Despina (Mason's Mommy) has worked extremely hard to make this absolutely fabulous!


Tickets are only $25 and it WILL BE a wonderful celebration of Congenital Diaphragmatic Hernia Awareness!


Please come join us - 4:00PM till...
3529 Winton Rd. South, Rochester NY
585.272.9780
(located in the Win-Jeff Plaza)
Live Auction(7:00pm)
Raffles (all night!)
Live Music
Eat, Drink and Be Merry!
For more information contact Despina Mitchell at: despina@keepinghopestrong.org or 585.703.6088
A Rochester CDH (Congenital Diaphragmatic Hernia) & Golisano Children's Hospital at Strong benefit event held by Keeping Hope Strong.

Tuesday, January 15, 2008

Mother Joins National Effort to Raise Awareness of Daughter's Birth Defect


Today, in Iowa there was an article in The Hawkye paper writen by Shawna Richtner which features one of the Breath of Hope Director's and her beautiful daughter.




Absolutely Inspiring And Spreading Awareness!


Thank you Shawna Richtner - wonderful article!