It’s New Year’s Eve. Breath of Hope has lots of plans for the coming year. At the moment families have children in hospitals, some are facing CDH and the unknown, many are rolling up their sleeves and thinking of ideas to raise more awareness, support and helping research. As we reflect on 2011, we have seen tragedy and cried with families. We have prayed for spiritual strength and held our families in our hearts. We have hoped our love and support has helped hearts mend. And we have seen miracles, where no logical person would ever put money down on the odds faced but faith came through! We know miracles happen every day and we cry tears of joy when they beat the odds and go home! We know our information and support gives hope in hopeless situations. To you all who have supported us through 2011, WE THANK YOU. From donations, to invaluable volunteer time and good thoughts and prayers - THANK YOU. You have allowed us to close another successful year of supporting CDH children and their families – our 6th. We wish you joy, peace and prosperity in 2012. We hope you will continue to stand by us.

Breath of Hope - Member Organization of NORD

The Board of Directors of NORD has accepted Breath of Hope as a Member Organization.  NORD is a unique federation of organizations that share a common interest in helping people with rare diseases. These organizations have learned that they speak with a louder voice when they work together, even though their individual missions may differ in specific details.

NORD member organizations share the benefit of representation in Washington, DC, through the efforts of NORD's Vice President for Public Policy in its Washington office. They also receive frequent briefings from NORD on political and medical news, as well as guidance on topics related to accomplishing their organizational goals.

To view a list of current organization members with direct links to their websites, click here. (We just received notification via email today and are not currently listed but will be soon.)