For A Breath of Hope - CDH Awareness

Today, there was a very special event in Virginia.  Emma above was born, undiagnosed with CDH on March 31, 2010.  Her family paid it forward by having a wonderful event to help benefit Breath of Hope and so we can further help support families and support research efforts for CDH.  Click here for the link to the article that ran in The News-Gazette Paper.  The reporter, Claudia Schwab was at the event today taking notes - so there may be a follow up article!  Thank you to this amazing family. 

This picture is of the CHOP SDU decked out in their Turquoise - and from what we have heard - all CDH babies received onsies in the same style!  (Thank you Dr. Hedrick!)  

And here is Saint Louis Fetal Care staff in their turquoise on March 31st too!

This was just an awesome picture shared!

This is Emma making sure the Proclamation from Beuna Vista is correct!  So serious!

If you have pictures of you in turquoise - you would like to share - please feel free to contact us!  We love this.  We sincerely hope the hospitals out there promoting CDH Awareness Day received significant donations for their research.  That is the result we hope Congenital Diaphragmatic Hernia Awareness Day would have - to bring dollars to research to find answers - and to give hope!

Peyton's Promise - Run - Walk May 16th

Peyton's Promise

2009 Family Fun 5K Run/2K Walk

Please bring your family out for a day of fun and help us raise money for babies born with CDH.

Date: Saturday, May 16, 2009

Registration Time: 9:30

Race Start: 11:00

Location: JFK and Promenade, Sea Isle CityPrice:

Adults $25 (pre-registration by May 6th $20)

Kids aged 5-12: $10, Kids under 5: Free!

*additional donations are welcome*If you can not make the race, but would like to make a donation, please send checks to Peyton's Promise, PO Box 122, Sea Isle City, NJ 08243.