Rounds for Ryann - Golf Tournament in Illinois

Rounds4Ryann is June 4th at iron horse golf course in Tuscola!!!! Email ryannscdhhope@yahoo.com for registration details!! 1 tee time, lunch, and dinner, and lots of great auction items this year!! They also need hole sponsors!!  $100 for sponsorship of a hole!  

All proceeds go to St. Louis Children's Hospital DHREAMS program, research for Congenital Diaphragmatic Hernia.

For A Breath of Hope - CDH Awareness

Today, there was a very special event in Virginia.  Emma above was born, undiagnosed with CDH on March 31, 2010.  Her family paid it forward by having a wonderful event to help benefit Breath of Hope and so we can further help support families and support research efforts for CDH.  Click here for the link to the article that ran in The News-Gazette Paper.  The reporter, Claudia Schwab was at the event today taking notes - so there may be a follow up article!  Thank you to this amazing family. 

This picture is of the CHOP SDU decked out in their Turquoise - and from what we have heard - all CDH babies received onsies in the same style!  (Thank you Dr. Hedrick!)  

And here is Saint Louis Fetal Care staff in their turquoise on March 31st too!

This was just an awesome picture shared!

This is Emma making sure the Proclamation from Beuna Vista is correct!  So serious!

If you have pictures of you in turquoise - you would like to share - please feel free to contact us!  We love this.  We sincerely hope the hospitals out there promoting CDH Awareness Day received significant donations for their research.  That is the result we hope Congenital Diaphragmatic Hernia Awareness Day would have - to bring dollars to research to find answers - and to give hope!

2nd Annual Cadan's Halloween Carnival - CDH Research Benefit!

If you are in the Illinois area - this is an awesome family event!  All proceeds raised will go to Saint Louis Children's Hospital to benefit research to benefit congenital diaphragmatic hernia. 

More details are on Facebook - click here

Thank you!

Breath of Hope is listed as a "Circle of Care" Donor

From Saint Louis Children's Hospital 2009 Annual Report.  Please view the middle row - Breath of Hope is listed as a "Circle of Care" Donor. 

Breath of Hope is an organization that supports Medical Research which will assist in furthering the care of Congenital Diaphragmatic Hernia.  We are not medical researchers, we are parents who run a very efficient nonprofit organization.  Less than 18% of all revenue is used for Administrative costs.  We continue to help support Medical Research and put funds to work to do this. 

Barnes-Jewish, St. Louis Children’s Hospital and Washington University Launch Fetal Care Center to Treat High-Risk Mothers and Infants

See the full article here.

Medical Research Support Results

Another step forward in an effort to further the care of congenital diaphragmatic hernia infants has been accomplished!  Please read here.

This was an effort collaborated by a team from the Saint Louis Fetal Care Institute - Cardinal Glennon, SSM Saint Mary's Health Center and Saint Louis University.

Children's Surgical Sciences Institute at Saint Louis Childrens

Saint Louis Children's Dr. Brad Warner is the physician leader of CSSI which has assembled surgeons to evaluate surgical techniques, research and share expertise in order to improve the surgeries performed to help children.

This information was reported in the Saint Louis Children's Newsletter "Gifts" Fall 2009. Dr. Warner has also successfully recruited a fetal surgeon which will not only help in congenital diaphragmatic hernia infants but many others too. He is continuing this effort to find committed pediatric surgeons for CSSI.

Currently there is nothing like CSSI anywhere in the United States. Initially CSSI is focusing on four speciality areas:

• Fetal repair - many conditions can now be treated through fetal surgery, Dr. Warner recently recruited a pediatric surgeon to enhance the team's capabilities in fetal procedures and research congenital birth defects.
• Childhood cancer - many cancer treatments require surgery but many childhood cancers can not be cured. Research will assist in developing new surgical treatment options. Dr. Warner is searching for a cancer surgeon researcher to lead in this area for CSSI.
• Trauma - the program is quickly developing in staff to investigate treatments for childhood trauma, improve survival and aid in the prevention of traumatic incidents in the future.
• Pediatric gastroenterology - this is Dr. Warner's special interest and he continues his research through CSSI. Current research are in Necrotizing enterocolitis and short bowl syndrome. Congenital conditions such as diaphragmatic hernias are also the focus. The surgeons not only diagnose and treat CDH but have carried out new surgical methods to improve outcomes.

On March 31, 2009, a group of determined families, in memory of their amazing children and in honor of their equally amazing children went to Saint Louis Children's Hospital. They presented a check which represented donations received in memory of Cadan Christopher, Ryann Hope and Evan directed to SLCH in an effort to assist research that would benefit congenital diaphragmatic hernia.

These families, children, health professionals and their children were there (some in spirit) to help assist to start this amazing endeavor. Breath of Hope is humbled by what a small group of very determined people can do with hard work, effort and the undying fire within to make a difference. This will make a difference, now and in the future!

Cadan's Halloween Carnival - Fundraiser for Congenital Diaphragmatic Hernia (CDH) Research

This Sunday, October 25 from 2 PM through 6 PM if you are in the area - please go to this great event for kids and those who are kids at heart! Proceeds will benefit the Saint Louis Children's Hospital - Medical Research to help advance the care of infants born with congenital diaphragmatic hernia.

A great article about Tiffany, Rome and of course Cadan is here.

Cadan's Halloween Carnival - Fundraiser for Congenital Diaphragmatic Hernia (CDH) Research

Oct. 25th, 2009 will be the first annual Halloween Carnival from 2-6 at the Knights of Columbus in Quincy, IL. There will be plenty of entertainment for both adults and children. All of the proceeds will go towards CDH research at Saint Louis Children's Hospital!

In Memory of a beautiful baby boy who has inspired so many - and will make an impact on the future of research of congenital diaphragmatic hernia!

Cadan's Cause on Facebook!