Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Saturday, June 23, 2007

Core of Breath of Hope....

Integrity is the basing of one's actions on a consistent framework of principles. Depth of principles and adherence of each level to the next are key determining factors. One is said to have integrity to the extent that everything he does and believes is based on the same core set of values. While those values may change, it is their consistency with each other and with the person's actions that determine his integrity.

Tuesday, June 19, 2007


Recent issues a member commented that I must have the Mission Statement of Breath of Hope on my wall. I don't - just recall reading it and re-reading it among the Board Members to get it right.

Breath of Hope
Congenital Diaphragmatic Hernia (CDH)
Supporting all ~ Searching for a cure

Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day prevent or successfully treat those diagnosed with a congenital diaphragmatic hernia.

Sunday, June 17, 2007

Why A Bumble the Logo?

Immortality, rebirth, industry, order, purity, soul, chastity,
messengers between worlds, secret wisdom

In dreams, the bee represents approaching death: one's soul is buzzing
off. They have often been viewed as brave, industrious, clean,
politically harmonious, and aesthetically gifted; these qualities
provide extensive fodder for symbolic representation. The bee
represents perfect community, and although it is weak in body, it is
strong in spirit and wisdom.

In Egyptian culture, the bee is associated with royal hierarchy
because of their monarchic organization, industry, creative activity
and wealth. In Paradise they were the 'little winged servants of God'
only changing to brown after the fall, and, with Eagles, are the only
animals that have access to heaven.

Friday, June 8, 2007

A Breath of Hope

Hope that after the dreaded news that things will turn out alright or hope that you can handle anything that will come to you if things do not go right. Why Breath of Hope was started to help others know there was hope that people cared. Those that have "been there, done that" know better what it is like than anyone else. We know the cycles of grief that occur for both Expectant Parents, Parents who have children that survive CDH and for Parents whose child decided wings were more appealing than feet.

To give a Breath of Hope, when the worst experience happens. To have a doctor tell you your unborn, newly born or still born child has Congenital Diaphragmatic Hernia and has a 50/50 chance. Even if they survive it, that they might have health issues.

To give a Breath of Hope....