Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Wednesday, January 26, 2011

Perfect Time to Request Congenital Diaphragmatic Hernia Awareness Day!

This is the perfect time for those of you who wish, to send in your requests to your State Governor or your Mayor to request March 31, 2011 to be Congenital Diaphragmatic Hernia Awareness Day in your community! 

Most states request they come no earlier than ninety (90) days prior to the date.  If you are interested, please email us at - we will send you a Sample Letter, you can edit with your information, sample Proclamations as a guide for your state or city and other documents to help!

You keep the Proclamation - we just ask for a photo!  

Thank you!

Sunday, January 2, 2011

Breath of Hope's You Tube Account & Videos

The first one here is "The Reality of Congenital Diaphragmatic Hernia" - not for the squeamish and we warn you there are infants in NICUs hooked up to wires and tubes.  The second video is Congenital Diaphragmatic Hernia Awareness Day - a brief history of the Campaign.

Our channel on YouTube is here.  Please feel free to subscribe!  Thank you!