Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Tuesday, September 30, 2008

CDH Study Group

This http://cdhsg. net/ web site is designed as a resource for the Congenital Diaphragmatic Hernia Study Group. The CDH Study Group has over 50 centers that submitting data to this database that is run by Kevin P. Lally, MD. The Wisconsin coordinator monitors the NICU census daily.

Sunday, September 28, 2008

Johns Hopkins - Link & Medical Research Funded

I had to share this link that Johns Hopkins has for congenital diaphragmatic hernia:

Breath of Hope, Incorporated also has donated funds to Johns Hopkins for Medical Research related to CDH. We will continue to donate funds for medical research out there so that one day through awareness and research answers and treatments will be found.

Thursday, September 25, 2008

Courage - the Foundation of Integrity

With courage you will dare to take risks, have the strength to be compassionate, and the wisdom to be humble. Courage is the foundation of integrity. --Keshavan Nair

Tuesday, September 23, 2008

Timely Quote....

Empty pockets never held anyone back. Only empty heads and empty hearts can do that.
--Norman Vincent Peale

Sunday, September 21, 2008

Handprint Kits from the United Way Day of Caring

With eight volunteers we assembled 500 of the pictured kits with Paris of Plaster and the Instructions inside. These will be a treasured memento for families whose children are admitted to the University of Virginia Children's Medical Center NICU and for those Breath of Hope Expectant Parents too.
The University of Virginia Health Service Supply Chain Management Staff is amazing! Thank you all!

Saturday, September 20, 2008

Breath of Hope

Life is fragile, but hope is strong.

All good things begin with hope.

Saturday, September 13, 2008

Breath of Hope and the United Way Day of Caring

This is the 17th Annual United Way Laurence E. Richardson Day of Caring in Charlottesville, Virginia. It is an opportunity for local charities to receive volunteers to help with many things that may not get done due to limited manpower. Local businesses have their employees volunteer to help with anything from office work to landscaping.

Breath of Hope has signed up to receive volunteers on Wednesday, September 17, 2008 who will be assembling Infant Hand Print Kits which will go to the University of Virginia Children's Medical Center NICU. Families who have a baby at UVA's NICU will receive a hand print kit to keep as a treasured memory of their little one's first days on earth. UVA has approximately 450 infants admitted to their NICU each year we will be assembling 500. Of those kits, 50 will be used for Breath of Hope's Expectant Parent Care Package which has always included a hand print kit for these special babies.

Added to this - 17 others will learn of the congenital diaphragmatic hernia birth defect and may spread the word to many others too.

Thursday, September 4, 2008

Aware - Awareness - Cognizant

Let us not look back in anger, nor forward in fear, but around in awareness. --James Thurber

play_w2("A0551800") (-wâr) adj.
1. Having knowledge or cognizance: aware of the difference between the two versions; became aware of faint sound.
2. Archaic Vigilant; watchful.

[Middle English, variant of iwar, from Old English gewær; see wer-3 in Indo-European roots.]

a·wareness n.
Synonyms: aware, cognizant, conscious, sensible, awake, alert, watchful, vigilantThese adjectives mean mindful or heedful: Aware implies knowledge gained through one's own perceptions or by means of information:
Are you aware of your opponent's hostility?
I am aware that the legislation passed.

Cognizant is a formal equivalent of aware: "Our research indicates that the nation's youth are cognizant of the law" Jerry D. Jennings.Conscious emphasizes the recognition of something sensed or felt: "an importance . . . of which even Americans are barely conscious" William Stanley Jevons.

Sensible implies knowledge gained through intuition or intellectual perception: "I am sensible that the mention of such a circumstance may appear trifling" Henry Hallam.

To be awake is to have full consciousness of something: "as much awake to the novelty of attention in that quarter as Elizabeth herself" Jane Austen.Alert stresses quickness to recognize and respond: I remained alert to career opportunities.Watchful and vigilant imply looking out for what is dangerous or potentially so: The watchful parents protected their toddler. The ranger kept a vigilant eye out for forest fires.

The American Heritage® Dictionary of the English Language, Fourth Edition copyright ©2000 by Houghton Mifflin Company. Updated in 2003. Published by Houghton Mifflin Company. All rights reserved.