Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Thursday, April 28, 2011

Jaxson's Jog in Pennsylvania

Jaxson's Jog is 10K, 5K Run plus a 2.5 Mile Walk in Support of Children with Congenital Diaphragmatic Hernia (CDH).  Your registration makes a difference!  All proceeds benefit Global CDH.
2011 Race News:
  • 2011 race date: Saturday, May 28
    Race day
    registration: 8 am - 9:15 am
    Race starts at 9:30 am
  • 2011 race location:  North Park Boat House, Allison Park, PA 15101
  • We are working on some new and exciting race day activities - stay tuned!
  • Interested in sponsoring the 2011 race?  Email
Follow Jaxson's Jog on Facebook:

There are several available sponsorships available. Our sponsorship goal is $2000. If just 20 businesses donated $100 we would meet our goal! Let us share the benefits with you today! email for more information. Website:

Rounds for Ryann - Golf Tournament in Illinois

Rounds4Ryann is June 4th at iron horse golf course in Tuscola!!!! Email for registration details!! 1 tee time, lunch, and dinner, and lots of great auction items this year!! They also need hole sponsors!!  $100 for sponsorship of a hole!  
All proceeds go to St. Louis Children's Hospital DHREAMS program, research for Congenital Diaphragmatic Hernia.

Saturday, April 2, 2011

For A Breath of Hope - CDH Awareness

Today, there was a very special event in Virginia.  Emma above was born, undiagnosed with CDH on March 31, 2010.  Her family paid it forward by having a wonderful event to help benefit Breath of Hope and so we can further help support families and support research efforts for CDH.  Click here for the link to the article that ran in The News-Gazette Paper.  The reporter, Claudia Schwab was at the event today taking notes - so there may be a follow up article!  Thank you to this amazing family. 

This picture is of the CHOP SDU decked out in their Turquoise - and from what we have heard - all CDH babies received onsies in the same style!  (Thank you Dr. Hedrick!)  

And here is Saint Louis Fetal Care staff in their turquoise on March 31st too!

This was just an awesome picture shared!

This is Emma making sure the Proclamation from Beuna Vista is correct!  So serious!

If you have pictures of you in turquoise - you would like to share - please feel free to contact us!  We love this.  We sincerely hope the hospitals out there promoting CDH Awareness Day received significant donations for their research.  That is the result we hope Congenital Diaphragmatic Hernia Awareness Day would have - to bring dollars to research to find answers - and to give hope!