Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Sunday, October 31, 2010

2011 Faces of CDH Calendar & Breath of Hope's New Logo

The 2011 Faces of CDH Calendar is now available on Cafepress.  If you go to this link - please consider going to Goodsearch - Good Shopping - a percent of your sale will go to Breath of Hope!  The calendar comes in two sizes 17X11 for $19.99 and 11 X 8.5 for $16.99, both make excellent gifts!

Also today is the LAST DAY for FREE Shipping on all orders over $40.00 - the coupon code is NEWSHIP40

Click here to go directly to the Breath of Hope Cafepress Site - if you shop from Cafepress the prices are slightly more!

We are always honored by all the families who send in the photos of these amazing children.  It truly is their faces that make these calendars so perfect!  Thank you!

Wednesday, October 27, 2010

Each Day 5 Infants are Diagnosed with CDH

Today almost 5 families in the United States alone will receive the devastating news that their unborn child will have to fight for its life. They have been diagnosed with a potentially fatal birth defect called a congenital diaphragmatic hernia. A congenital diaphragmatic hernia is where the diaphragm in development does not completely close in an unborn baby and organs migrate to the thorax which under normal circumstances is where the heart and developing lungs are located. This defect has a profound impact on lung function.

Thirty-five (35) families a week. One hundred fifty (150) families a month. 1800 families a year. Congenital diaphragmatic hernia occurs just as often as spina bifia and cystic fibrois yet most do not hear of it until their child is diagnosed.

It doesn't just affect the baby, the mother and the father – it affects the whole family and the entire community. This baby will need Intensive Medical Care at a level three NICU with ECMO. The medical bills will total hundreds of thousands and quite often, millions of dollars. These are million dollar babies. The care to save their lives depletes blood supplies at local blood banks – one infant required 6 gallons of blood and blood product in 38 days. Some families will be financially depleted due to the long term care of these children or other costs associated with one or both parents without a job. Without benefits, Medicaid takes over and covers costs. Some families require state and government assistance for short periods of time. This has an effect on communities. Some insurance companies have "Lifetime Caps" and these children reach them very quickly. These children require insurance to provide the therapy they need so that they can accelerate and thrive.

What can you do to help save these babies? What will help these families? What can you do to make a difference?

1. Learn about congenital diaphragmatic hernias.
2. Donate blood regularly, if you can, to your local blood centers to help ensure all patients receive the blood they need.
4. If you are looking for a cause to help with – we would welcome your assistance!
5. Wear turquoise on March 31, 2010 for Congenital Diaphragmatic Hernia Awareness Day! When someone asks what it's for – tell them! Or wear it every day!  (Many of us do!)

written entirely by Elizabeth Doyle-Propst 10/27/2007

Copyrighted - Breath of Hope Inc. - if you wish to use this - you can - just site the source!

Thursday, October 14, 2010

Wave of Light - Pregnancy and Infant Loss Awareness Day - October 15th

On October 15th it is International Pregnancy and Infant Loss Awareness Day.  On this day, please light a candle at 7 PM in your time zone and you can extinguish it at 8 PM.  This will create a continuous  wave of light around the world for the little angels to see from heaven.

For more information - click here

Tuesday, October 12, 2010

2nd Annual Cadan's Halloween Carnival - CDH Research Benefit!

If you are in the Illinois area - this is an awesome family event!  All proceeds raised will go to Saint Louis Children's Hospital to benefit research to benefit congenital diaphragmatic hernia. 

More details are on Facebook - click here

Thank you!

Friday, October 1, 2010

Faces of CDH Calendar for 2011

We are taking photos for the Faces of CDH Awareness Calendar for 2011, this is the fourth year we have produced this calendar. Please send pictures to by October 15, we will provide a consent form. 

Below are samples from our calendar this year.  These make great gifts for under $20 and are wonderful to give friends, family and doctors or your favorite nurse.