Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Sunday, May 25, 2008

Thoracoscopic Congenital Diaphragmatic Hernia Repair in an Infant

I came across this link from a CDH Mom's blog - on this link is a video of a Thoracopic Congenital Diaphragmatic Hernia Repair - it is just the view from the camera as surgery is done. It is amazing. Most CDH Repairs are done with traditional surgery. Those that are not as large can be done as this one.

Sunday, May 18, 2008

New Blog - Faces of CDH Awareness

This blog will feature a child and family affected by CDH and also collect links to their websites, blogs and Carepages - so that others can easily find those who have been affected by the birth defect Congenital Diaphragmatic Hernia.

We are adding to it and soon will feature a child on a regular basis. We also hope this gives hope to those expecting a CDH baby and their families and friends and also to those amazing health professinals out there on the front lines!



Long overdue - we apologize but here are the winners of the "Show Me Your Turquoise" contest:

From the Top - Sophia and her Turquoise Ribbon - her family and friends did a wonderful Job Raising Awareness and wearing Turquoise!
Emerson - Ah that face - and Wear Turquoise for Me T-shirt - how could you not with that face!
From the Great White North - Canada - Melissa and her boys in Turquoise and taking Turquoise Balloons for Nimkee ;-)...
And Jack showing REAL MEN do wear Turquoise - I dare anyone to tell this tough little guy they don't!
These were not in any order - we had four entries and four Gift Certificates to give - the results are all were winners. I am so glad - I couldn't decide!

Friday, May 16, 2008

Most Powerful Advocate

"There is no more powerful advocate than a parent armed with information and options."
-- Rod Paige, Secretary of Education
Thank you Carrie for sharing this quote!