Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Tuesday, February 19, 2008

Frederick News Post - Article on Congenital Diaphragmatic Hernia Awareness Day & Adorable Jack

There will be a blood drive in honor of Jack and all ECMO Patients and there is a wonderful article published today on Congenital Diaphragmatic Hernia and Awareness Day! Jack is spreading awareness and looking very handsome doing so!

Saturday, February 16, 2008

Friday, February 15, 2008

Congenital Diaphragmatic Hernia Awareness Month of March in Iowa

Governor Chet Culver, Terri Helmick, Director of Breath of Hope and Ava are pictured with Iowa’s Proclamation, Congenital Diaphragmatic Hernia Awareness Month of March 2008.

Thank you Terri for writing your letter and being an amazing Awareness Advocate! Governor Culver, thank you for recognizing this birth defect, the need for awareness in Iowa and taking time to pose for a wonderful picture. And Thank you Ava for being the beautiful miracle you are!

Sunday, February 10, 2008


In an effort to give choice we added a NEW shirt design to our Breath of Hope Cafepress store! I Wear Turquoise for ....
Commission earned on this merchandise is only $1 per item.
Get your Turquoise for March 31, 2008 - the FIRST EVER
Congenital Diaphragmatic Hernia Awareness TM Day!

Sunday, February 3, 2008

Making A Difference -

“One person can make a difference and every person should try.” John F. Kennedy
Keeping Hope Strong
February 9th, 2008,
To automatically be entered into the grand prize drawing for a weekend getaway!
Tickets available at:
JB Quimby's Public House3529 Winton Rd. South, Rochester NY 585.272.9780
Donnelly's Public House1 Water Street Fairport, NY 377-5450
Or contact Despina Mitchell at 585-703-6088 or
A benefit in Honor of Mason Mitchell:CDH (Congenital Diaphragmatic Hernia) / ECMO (Extra Corporeal Membrane Oxygenation) Survivor & NICU Graduate.

Please come join us - 4:00PM till...JB Quimby's Public House
3529 Winton Rd. South,
Rochester NY
585.272.9780(located in the Win-Jeff Plaza)
Live Auction(7:00pm)
Raffles(all night!)
Live Music
Eat, Drink and Be Merry!
JB Quimby's is donating a portion of food and drink sales during this event!
For more information contact Despina Mitchell at: or 585.703.6088
A Rochester CDH (Congenital Diaphragmatic Hernia) & Golisano Children's Hospital at Strong benefit event held by Keeping Hope Strong.