Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Friday, October 30, 2009

Goodsearch for Research - Breath of Hope Toolbar

Did you know if you Goodsearch or Goodshop for your favorite charity they will receive about one cent for each search and a percent donated of the sale from the retailer you purchase from? And it costs you nothing! That is right - absolutely nothing. All you have to do is search or shop through GoodSearch/GoodShop.

And if you go here - to make it easier for you - you can download a Toolbar to do this for Breath of Hope! Last year we started a campaign where the proceeds raised from GoodSearch would go to CDH Research. GoodSearch for CDH Research - and we have given the proceeds to research that will benefit medical research of congenital diaphragmatic hernia.

So download the toolbar and when you do your on-line shopping or searching - you will benefit CDH Medical Research!

Monday, October 26, 2009

A CDH Christmas

If you like this - you can order it for your Christmas Tree or as a gift - please go here A CDH Christmas

Friday, October 23, 2009

Cadan's Halloween Carnival - Fundraiser for Congenital Diaphragmatic Hernia (CDH) Research

This Sunday, October 25 from 2 PM through 6 PM if you are in the area - please go to this great event for kids and those who are kids at heart! Proceeds will benefit the Saint Louis Children's Hospital - Medical Research to help advance the care of infants born with congenital diaphragmatic hernia.

A great article about Tiffany, Rome and of course Cadan is here.

Wednesday, October 14, 2009

Wave of Light October 15 - Pregnancy & Infant Loss Rememberance Day

Please light a candle at 7 PM your time - extinguish it at 8 PM so the little angels will see the light traveling around the world in their honor - on their day - Thursday, October 15, 2009.

Tuesday, October 13, 2009

Cadan's Halloween Carnival - Fundraiser for Congenital Diaphragmatic Hernia (CDH) Research

Oct. 25th, 2009 will be the first annual Halloween Carnival from 2-6 at the Knights of Columbus in Quincy, IL. There will be plenty of entertainment for both adults and children. All of the proceeds will go towards CDH research at Saint Louis Children's Hospital!

In Memory of a beautiful baby boy who has inspired so many - and will make an impact on the future of research of congenital diaphragmatic hernia!

Wednesday, October 7, 2009

2010 Faces of CDH Calendar Now Available

There are two sizes available and lots of beautiful Faces of CDH!

Great gift for relatives, friends, doctors, anyone you know you just don't know what they need! Everyone needs a calendar! (And under $20!) - $19.99 - $16.99

Also note - these prices are good if you go to or through the Breath of Hope "Shop" - Cafepress sells them in the Marketplace for up to $25.00. (Yes we get our mere commission which is under $1 to $2 each but we want you to get as much savings in today's economy as you can!)

Also - there is a notice on the front of the shop with what was stated as an updated "coupon code" you can use for your order! Please let us know if the code does not work - sometimes these third party sites are a bit unscrupulous!

Interesting Quote ...

Who indeed can harm you if you are committed deeply to doing what is right? - I Peter

Friday, October 2, 2009

United Way Day of Caring - Hand Print Kits & Ribbon Assembly!

September 23, 2009 -

A huge thank you to the Thomas Jefferson Area United Way and the Volunteers who came from the University of Virginia Health Services Library who helped assemble 400 Hand Print Kits and about 1,000 Awareness Ribbons on Cards! Also many thanks to PRA International in Charlottesville who donated the Training Rooms as an area to have these volunteers help with these projects.

The Infant Hand Print Kits:

These will go to the University of Virginia's CMC Neonatal Intenstive Care Unit - all families who have a baby admitted at UVA's NICU receive one of these kits to capture their child's small hand print at birth. We also provide a kit in our Expectant / New Parent Packages for families who have a baby diagnosed with congenital diaphragmatic hernia.

Below are a few pictures of the amazing group assembling ribbons on cards.

They also featured their good work and they should here

Quotes by Ghandi on his Birthday...

Freedom is not worth having if it does not include the freedom to make mistakes.

I object to violence because when it appears to do good, the good is only temporary, the evil it does is permanent.

In the attitude of silence the soul finds the path in a clearer light, and what is elusive and deceptive resolves itself into crystal clearness. Our life is a long and arduous quest after the Truth.

It is unwise to be too sure of one’s own wisdom. It is healthy to be reminded that the strongest might weaken and the wisest might err.

Strength does not come from physical capacity. It comes from an indomitable will.

(The last one, I believe explains the amazing strength of these infants and children in battling CDH and their parents for loving them through the battles.)