Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Thursday, January 24, 2008

Heart of Gold Winner - Princess Projects

Terri, Ava's Mommy who was featured in the Iowa Paper Article about congenital diaphragmatic hernia, Congenital Diaphragmatic Hernia Awareness Day and is helping Breath of Hope spread awareness was sought out by Princess Projects.

Terri was awarded the Heart of Gold Award!
Princess Projects Mission:
Our Mission ~~*~Giving Challenged Girls the Attitude of a Princess~*~Our goal is to honor girls who face challenges - With a Princess Party -Complete with their own tiara
What a wonderful reward for spreading Awareness!

Wednesday, January 23, 2008

Mason is our Miracle

And yet another Newspaper Article - on the front page in Rochester, New York!
Webster Post by Tori Uthe
Despina - this is wonderful and Mason is beautiful!
Thank you Tori Uthe for reporting on this Miracle!

Tuesday, January 22, 2008

A Cause for Caden

Huntsville, Alabama Times Article by Steve Doyle

And the Cause? What else?

Congenital Diaphragmatic Hernia AwarenessTM!

Jennifer this was absolutely awesome and Steve Doyle - you wrote a fantastic article!

Sunday, January 20, 2008

Keeping Hope Strong - Update - Rochester, New York

If anyone is in this area, knows someone that may be in the area of Rochester, New York please consider going to this Event. Despina (Mason's Mommy) has worked extremely hard to make this absolutely fabulous!

Tickets are only $25 and it WILL BE a wonderful celebration of Congenital Diaphragmatic Hernia Awareness!

Please come join us - 4:00PM till...
3529 Winton Rd. South, Rochester NY
(located in the Win-Jeff Plaza)
Live Auction(7:00pm)
Raffles (all night!)
Live Music
Eat, Drink and Be Merry!
For more information contact Despina Mitchell at: or 585.703.6088
A Rochester CDH (Congenital Diaphragmatic Hernia) & Golisano Children's Hospital at Strong benefit event held by Keeping Hope Strong.

Tuesday, January 15, 2008

Mother Joins National Effort to Raise Awareness of Daughter's Birth Defect

Today, in Iowa there was an article in The Hawkye paper writen by Shawna Richtner which features one of the Breath of Hope Director's and her beautiful daughter.

Absolutely Inspiring And Spreading Awareness!

Thank you Shawna Richtner - wonderful article!

Monday, January 14, 2008


One of our amazing members who was inspired by her precious son, Elijah sent me this and I had to share.

Just beautiful Lyna!

Saturday, January 12, 2008

Keeping Hope Strong

On February 9, 2007 there will be a fund raiser in Rochester, New York that will be huge and wonderful. Despina, Mason's Mommy has done an awesome job doing this!

A Rochester CDH (Congenital Diaphragmatic Hernia) & Golisano Children's Hospital at Strong benefit event held by Keeping Hope Strong!

And the most ironic thing about this whole thing - I went to visit the Department Head at the University of Virginia's NICU yesterday and he came from Golisano Children's Hospital at Strong!

What a way to Keep Hope Strong and Promote Congenital Diaphragmatic Hernia Awarness.

Wednesday, January 9, 2008

Update on Congenital Diaphragmatic Hernia AwarenessTM Day - The States!

New Hampshire
Rhode Island

Pending - we have heard they will sign soon:

New Jersey
New York
South Carolina

Cities/Towns that have Proclaimed March 31 as Congenital Diaphragmatic Hernia Awareness Day!

Charlotte, North Carolina
Schaumburg, Ill
Cincinnati, Ohio
Huntsville, AL

This is amazing - we started this in September - for those of you who sent in letters and have not heard yet - I encourage you all to contact them and see where it is in the process!

We also still need these states:

New Mexico
North Dakota
South Dakota
Washington DC