Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Thursday, August 30, 2007

There is Beauty in Simplicity

I have learned by some experience, by many examples, and by the writings of countless others before me, also occupied in the search, that certain environments, certain modes of life, certain rules of conduct are more conducive to inner and outer harmony than others. There are, in fact, certain roads that one may follow. Simplification of life is one of them. --Ann Morrow Lindbergh

I read this quote and thought of the journey that a family and friends travel when having a child with congenital diaphragmatic hernia. I also thought of how NOT simple and how simple the treatment for CDH - surgery, repair the diaphragm. It sounds so simplistic - yet it isn't and there are so many factors that determine if the little spirit will survive and be the amazing kids that all these survivors of CDH are - or become the amazing spirit that we know they are in heaven.

One of our babes is going through surgery today at John Hopkins and another babe just went through the Tracheal Occlusion in Rhode Island with some issues arising. We hope that the simplicity of our prayers, hopes, thoughts and lung function chants meet with survival of these two little spirits.

Wednesday, August 15, 2007

This spoke to me - Personally

It is to the credit of human nature, that, except where its selfishness is brought into play, it loves more readily than it hates. Hatred, by a gradual and quiet process, will even be transformed to love, unless the change be impeded by a continually new irritation of the original feeling of hostility. --Nathaniel Hawthorne

And those out there that are the irritation - know who they are....

Saturday, August 4, 2007

501 (c) (3) IT IS OFFICIAL as of May 17, 2004

We just received the Advance Determination Letter from the Internal Revenue Service, Department of the Treasury - Breath of Hope, Incorporated is exempt from Federal income tax under section 501 (c) (3) of the Internal Revenue Code. Contributions are deductible under section 170 of the Code. We are qualified to receive tax deducible bequests, devises, transfers or gifts under section 2055, 2106 or 2522 of the Code.

Effective Date of Exemption - May 17, 2004 ;-)

Yahooooooo! All that paperwork, the late nights, the editing, the reading and research PAYED OFF!