Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Thursday, August 30, 2007

There is Beauty in Simplicity

I have learned by some experience, by many examples, and by the writings of countless others before me, also occupied in the search, that certain environments, certain modes of life, certain rules of conduct are more conducive to inner and outer harmony than others. There are, in fact, certain roads that one may follow. Simplification of life is one of them. --Ann Morrow Lindbergh

I read this quote and thought of the journey that a family and friends travel when having a child with congenital diaphragmatic hernia. I also thought of how NOT simple and how simple the treatment for CDH - surgery, repair the diaphragm. It sounds so simplistic - yet it isn't and there are so many factors that determine if the little spirit will survive and be the amazing kids that all these survivors of CDH are - or become the amazing spirit that we know they are in heaven.

One of our babes is going through surgery today at John Hopkins and another babe just went through the Tracheal Occlusion in Rhode Island with some issues arising. We hope that the simplicity of our prayers, hopes, thoughts and lung function chants meet with survival of these two little spirits.

1 comment:

dbmom said...


I just happened across your blog while Google-ing CDH blogs. I think we knew each other years ago. I'm not sure if you remember us. We met through Cherubs. Our CDH son's name is Kurtis.

Anyway, just thought I'd say "hi." Our blog, if you are interested, is dancingboysmom dot wordpress dot com. Kurtis' moniker is DB2.