We just received verbal confirmation that a Senior Senator has agreed to help sponsor the Congenital Diaphragmatic Hernia Awareness Day Bill. This does not mean that we are not continuing to ask folks to help by writing their Congress person - we need as many contacted as possible! We have Sample Letters and the Sample Bill available. If you would like to help - please contact firstname.lastname@example.org
Also - we are continuing to paint each state Turquoise - so if you would like to request your Governor issue a Congenital Diaphragmatic Hernia Awareness Day Proclamation we have Sample Letters and Proclamations for that too! We also have Sample Proclamations for Mayors to have your city or town issue a Proclamation. Please feel free to contact us at email@example.com
(No you don't have to be a "member" of Breath of Hope - all we ask is you let us now when you send this in and who too - if you get a Proclamation - just take a picture or scan of it and send it to us! You keep the Proclamation! Or give it to a loved one who was affected by CDH or a Hospital who does wonderful work for CDH Families!)
And in the end, it's not the years in your life that count. It's the life in your years. - Abraham Lincoln
“Let every nation know, whether it wishes us well or ill, that we shall pay any price, bear any burden, meet any hardship, support any friend, oppose any foe to assure the survival and the success of liberty”~ John F. Kennedy
“For love of country they accepted death”... ~James A. Garfield
"A hero is someone who has given his or her life to something bigger than oneself." ~Joseph Campbell
"The dead soldier's silence sings our national anthem." ~Aaron Kilbourn
"How important it is for us to recognize and celebrate our heroes and she-roes!" ~Maya Angelou
The world’s population low estimate is 6 billion. The world birth rate is about 20 per 1000 which would make the number of births every given year at 12,000,000. (You divide 6 billion by 1000 and multiply by 20.) So – with 12 million babies born every year in the world, if CDH has a rate of 1 in 3,000 – this would be 40,000 born with congenital diaphragmatic hernia in the world every day – again an estimate. (You take 12 million and you divide that by 3000 to get 40,000).
This means in ten years there are 400,000 infants born with congenital diaphragmatic hernia and the death rate for these children is 50% so 200,000 die in 10 years. (Multiply 40,000 by 10.)
Each day in this world approximately 109 babies are born with CDH. About 4 babies an hour are born with CDH in the world every day. (Divide 40,000 by 365 – days in a year you get 109.5… then you divide 109 by 24 – hours – and that is 4 rounded.)
Meanwhile, Muscular Dystrophy has a rate of 1 in 6,000 births for the congenital form of this disease. They have Jerry Lewis and a Telethon that earns 65 million dollars for research. MD deserves this funding and recognition.
I'll lean on you and you lean on me and we'll be okay. --Dave Matthews Band
Life throws everyone a curb. It happens every day. No one can do it alone. When families are devastated by a diagnoses of congenital diaphragmatic hernia we know it can take many different paths. No two cases are exactly alike. Some of these children survive with little complications, some minor, some have a variety of issues that they outgrow or overcome. Then there are some who struggle, who have so much to overcome and still they choose wings over feet.
The families lean on one another for inspiration, information and understanding. Many times, the only people who truly know what you have been through are those who have been there themselves.
This was the first Awareness Ribbon created by Denise in May 2006. There was thought that the colors of black and yellow would infringe upon the Yellow Ribbon (Waiting for the return of a loved one - Military) and the Black Ribbon which is a symbol of mourning. Later, Breath of Hope adopted the color of Turquoise for our Logo and then for the ribbon for the Congenital Diaphragmatic Hernia Awareness Campaign.
A lie has speed, but truth has endurance. --Edgar J. Mohn
Nursing is an art: and if it is to be made an art, it requires an exclusive devotion as hard a preparation, as any painter's or sculptor's work; for what is the having to do with dead canvas or dead marble, compared with having to do with the living body, the temple of God's spirit? It is one of the Fine Arts: I had almost said, the finest of Fine Arts. ~Florence Nightingale
Thank you to all the nurses out there who truly deserve this day!