Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Thursday, May 28, 2009

National Congenital Diaphragmatic Hernia Awareness Day 2010

We just received verbal confirmation that a Senior Senator has agreed to help sponsor the Congenital Diaphragmatic Hernia Awareness Day Bill. This does not mean that we are not continuing to ask folks to help by writing their Congress person - we need as many contacted as possible! We have Sample Letters and the Sample Bill available. If you would like to help - please contact

Also - we are continuing to paint each state Turquoise - so if you would like to request your Governor issue a Congenital Diaphragmatic Hernia Awareness Day Proclamation we have Sample Letters and Proclamations for that too! We also have Sample Proclamations for Mayors to have your city or town issue a Proclamation. Please feel free to contact us at

(No you don't have to be a "member" of Breath of Hope - all we ask is you let us now when you send this in and who too - if you get a Proclamation - just take a picture or scan of it and send it to us! You keep the Proclamation! Or give it to a loved one who was affected by CDH or a Hospital who does wonderful work for CDH Families!)

Thank you!

And in the end, it's not the years in your life that count. It's the life in your years. - Abraham Lincoln

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