Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Tuesday, May 19, 2009

Map of Congenital Diaphragmatic Awareness Day Proclamations Issued

States colored Turquoise issued Proclamations for March 31, 2008 and/or March 31, 2009.
We will also be working on a Bill to go through Congress to have March 31 to be the National Congenital Diaphragmatic Hernia Awareness Day.
States will each year have to have requests - if you would like to have a Sample Letter and Proclamation, please email us at
If you know a Senator or a member of the House of Represenatives who will help us by sponsoring the Bill, please also contact us at the above email address!
Our goal is to turn this whole map Turquoise!
Every Breath They Take Is Our Breath of Hope...

No comments: