Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective

KSDK.com News Report of Saint Louis Children's Hospital Press Conference

Sunday, August 31, 2008

Hopeful Parents Anxiously Await Birth of Baby with Birth Defect - Congenital Diaphragmatic Hernia

An amazing Mom, Tiffany, who is expecting a CDH baby in November contacted her local paper and they ran a wonderful article today which appeared on the front page. Now that is spreading awareness!

The Quincy Herald Whig article by Kelly Wilson

http://www.whig.com/story/news/congenital-disorder---SUN

Absolutely wonderful article - Kelly Wilson did an awesome job!

Tuesday, August 26, 2008

A Quote to Live By...

Never give in... never, never, never, never, in nothing great or small, large or petty, never give in except to convictions of honour and good sense. Never yield to force... never yield to the apparently overwhelming might of the enemy. ~Winston Churchill

Sunday, August 3, 2008

Congenital Diaphragmatic Hernia Awareness Car Magnet Available


Extremely high quality - and the image is better and clearer than above. It took us several months to choose a vendor and these are perfect! They are rectangle 3 inches by 8 inches. These magnets don't take up much space but are a powerful impact!
As soon as we have a good picture of a one we will add it to the blog and website!
They are $2 each plus shipping! The buy Button is to the right of this page!

What Donations Do - Actions Speak Louder Than Words...


© Every Breath They Take Is Our Breath of Hope
The vision must be followed by the venture. It is not enough to stare up the steps -- we must step up the stairs. --Vance Havner




Many non-profit organizations will ask for donations. It is what sustains their existence. Few will tell you exactly what your donation does.




A donation of $10 will provide a grieving family with information to help them through this tragic life-changing event.




A donation of $15 will provide an expectant family with a blanket to wrap their CDH baby in as well as a hand print to keep as a memento of their child's first moments on earth.




A donation of $50 will more than cover one mailing at non-profit bulk rate of our Newsletter.




A donation of $100 will provide a Hospital or Medical Center with our printed materials to share with families.




A donation of $150 will help us provide 1,000 Awareness Ribbons for friends, families and the medical community. Breath of Hope provides these free of charge to everyone.




A donation of $25,000 will go towards our Scholarship Fund for these children to have a college degree, future health professionals to be and any one in the general public that wishes to further their education.




At Breath of Hope....

  • We don't use an ad agency
  • We don't use a Public Relations Firm
  • We don't use a Marketing Firm
  • We don't pay Executive or Professional Salaries
  • We do our mailings in-house
  • We don't rent mailing lists
  • We mail at maximum discounted bulk non-profit rates
  • We do our graphics in-house
  • We are Tax-Exempt in the Commonwealth of Virginia and purchase office supplies without paying sales tax
  • To maximize our expenses, we purchase office supplies using coupons, sales and reward certificates and utilize Good Search to get a percent back at the end of the year.
  • Prizes are sponsored
  • We virtually have no overhead
  • Our Accounting is done in-house
  • Most work is done by talented volunteers

Congenital Diaphragmatic Hernia AwarenessTM started with Breath of Hope's campaign to have each and every state in the US to Proclaim March 31 as Congenital Diaphragmatic Hernia Awareness® Day. This year we had 31 States. Governors and local officials all over the United States became aware of CDH. Senator Clinton became aware of CDH. In nine months we accomplished something no other had done before. We will continue to work towards a Perpetual Day that will recognize March 31 as a day to pause, reflect and learn of this birth defect that every week 5 families hear about for the first time. We want to change that fact.


Breath of Hope, Incorporated© 2008