The 2011 Faces of CDH Calendar is now available on Cafepress. If you go to this link - please consider going to Goodsearch - Good Shopping - a percent of your sale will go to Breath of Hope! The calendar comes in two sizes 17X11 for $19.99 and 11 X 8.5 for $16.99, both make excellent gifts!
Also today is the LAST DAY for FREE Shipping on all orders over $40.00 - the coupon code is NEWSHIP40
Click here to go directly to the Breath of Hope Cafepress Site - if you shop from Cafepress the prices are slightly more!
We are always honored by all the families who send in the photos of these amazing children. It truly is their faces that make these calendars so perfect! Thank you!
Doctors, Families Rally for Cure for Deadly Birth Defect
Parent's Perspective
KSDK.com News Report of Saint Louis Children's Hospital Press Conference
Sunday, October 31, 2010
Wednesday, October 27, 2010
Each Day 5 Infants are Diagnosed with CDH
Today almost 5 families in the United States alone will receive the devastating news that their unborn child will have to fight for its life. They have been diagnosed with a potentially fatal birth defect called a congenital diaphragmatic hernia. A congenital diaphragmatic hernia is where the diaphragm in development does not completely close in an unborn baby and organs migrate to the thorax which under normal circumstances is where the heart and developing lungs are located. This defect has a profound impact on lung function.
Thirty-five (35) families a week. One hundred fifty (150) families a month. 1800 families a year. Congenital diaphragmatic hernia occurs just as often as spina bifia and cystic fibrois yet most do not hear of it until their child is diagnosed.
It doesn't just affect the baby, the mother and the father – it affects the whole family and the entire community. This baby will need Intensive Medical Care at a level three NICU with ECMO. The medical bills will total hundreds of thousands and quite often, millions of dollars. These are million dollar babies. The care to save their lives depletes blood supplies at local blood banks – one infant required 6 gallons of blood and blood product in 38 days. Some families will be financially depleted due to the long term care of these children or other costs associated with one or both parents without a job. Without benefits, Medicaid takes over and covers costs. Some families require state and government assistance for short periods of time. This has an effect on communities. Some insurance companies have "Lifetime Caps" and these children reach them very quickly. These children require insurance to provide the therapy they need so that they can accelerate and thrive.
What can you do to help save these babies? What will help these families? What can you do to make a difference?
1. Learn about congenital diaphragmatic hernias.
2. Donate blood regularly, if you can, to your local blood centers to help ensure all patients receive the blood they need.
4. If you are looking for a cause to help with – we would welcome your assistance!
5. Wear turquoise on March 31, 2010 for Congenital Diaphragmatic Hernia Awareness Day! When someone asks what it's for – tell them! Or wear it every day! (Many of us do!)
written entirely by Elizabeth Doyle-Propst 10/27/2007
_____________________
Copyrighted - Breath of Hope Inc. - if you wish to use this - you can - just site the source!
Thirty-five (35) families a week. One hundred fifty (150) families a month. 1800 families a year. Congenital diaphragmatic hernia occurs just as often as spina bifia and cystic fibrois yet most do not hear of it until their child is diagnosed.
It doesn't just affect the baby, the mother and the father – it affects the whole family and the entire community. This baby will need Intensive Medical Care at a level three NICU with ECMO. The medical bills will total hundreds of thousands and quite often, millions of dollars. These are million dollar babies. The care to save their lives depletes blood supplies at local blood banks – one infant required 6 gallons of blood and blood product in 38 days. Some families will be financially depleted due to the long term care of these children or other costs associated with one or both parents without a job. Without benefits, Medicaid takes over and covers costs. Some families require state and government assistance for short periods of time. This has an effect on communities. Some insurance companies have "Lifetime Caps" and these children reach them very quickly. These children require insurance to provide the therapy they need so that they can accelerate and thrive.
What can you do to help save these babies? What will help these families? What can you do to make a difference?
1. Learn about congenital diaphragmatic hernias.
2. Donate blood regularly, if you can, to your local blood centers to help ensure all patients receive the blood they need.
4. If you are looking for a cause to help with – we would welcome your assistance!
5. Wear turquoise on March 31, 2010 for Congenital Diaphragmatic Hernia Awareness Day! When someone asks what it's for – tell them! Or wear it every day! (Many of us do!)
written entirely by Elizabeth Doyle-Propst 10/27/2007
_____________________
Copyrighted - Breath of Hope Inc. - if you wish to use this - you can - just site the source!
Thursday, October 14, 2010
Wave of Light - Pregnancy and Infant Loss Awareness Day - October 15th
On October 15th it is International Pregnancy and Infant Loss Awareness Day. On this day, please light a candle at 7 PM in your time zone and you can extinguish it at 8 PM. This will create a continuous wave of light around the world for the little angels to see from heaven.
For more information - click here
Tuesday, October 12, 2010
2nd Annual Cadan's Halloween Carnival - CDH Research Benefit!
If you are in the Illinois area - this is an awesome family event! All proceeds raised will go to Saint Louis Children's Hospital to benefit research to benefit congenital diaphragmatic hernia.
More details are on Facebook - click here
Thank you!
More details are on Facebook - click here
Thank you!
Friday, October 1, 2010
Faces of CDH Calendar for 2011
We are taking photos for the Faces of CDH Awareness Calendar for 2011, this is the fourth year we have produced this calendar. Please send pictures to pictures@cdhawareness.org by October 15, we will provide a consent form.
Below are samples from our calendar this year. These make great gifts for under $20 and are wonderful to give friends, family and doctors or your favorite nurse.
Below are samples from our calendar this year. These make great gifts for under $20 and are wonderful to give friends, family and doctors or your favorite nurse.
Saturday, September 25, 2010
Thomas Jefferson Area United Way Day of Caring - Giving that Gives Back
Since 2007, Breath of Hope has participated in the Thomas Jefferson Area United Way's Laurence Richardson's Day of Caring. Each year, in September, the Central Virginia's United Way coordinates hundreds of projects for other nonprofits and schools in the area and provides thousands of volunteers to help. It is the time of year, other nonprofits and schools look forward to receiving volunteers to complete projects they otherwise could not have done without the human power required.
In the summer or 2007, I heard a radio advertisement requesting nonprofit organizations contact our United Way to obtain the volunteers needed for projects for one day. We knew there was a project that we could untilize volunteers but we also wanted a project which would give back to the community. Breath of Hope had been supplied infant hand print kits for our Expectant/New Parent Packages by individual Board Members and myself. We had found a wholesaler which we could purchase these kits for approximately $5 each. We knew we could assemble them using containers and paris of plaster for less than $5 each. In fact, the total cost per kit with labels, ziplock bags and instructions are at a cost of about $1.25 each, far less than the cost we were paying.
We also had all our printed materials reviewed and edited by the University of Virginia's NICU staff lead by Robert Sinkin, MD and felt we should give back to them. On average, 450 infants are admitted each and every year at the NICU there. Today, a hand print kit is supplied to each and every family who has their baby admitted there. The remaining are used in Breath of Hope's packages and we have had extra to help send to Project Sweet Peas Projects around the country.
This year we had an amazing group of volunteers from CFA Institute and Banana Republic of Barracks Road come and learn about congenital diaphragmatic hernia, Breath of Hope and help us assemble another 500 hand print kits. And they see the results which we provide the UVA NICU. We know that families throughout the area benefit from these simple kits. We also know the staff at UVA's NICU enjoy giving this small token to families in order to capture their child's first days here on earth.
We thank the volunteers, the Thomas Jefferson Area's United Way (Shaele Wood should receive a metal for her coordination each and every year), PRA International for providing the space to complete this project and the UVA NICU for the inspiration, help and assistance to complete this project for three years.
Next year will be the 20th year of the United Way Day of Caring here in this area. Twenty years of helping other nonprofits and organizations have volunteers provided so they can help others. By giving, you give and get and it is returned,
We would also like to promote a wonderful Printer we used this year - their service and quality are amazing! With very short notice we were able to get our labels and they went over and above the call of duty! Lepin' Lizard Labels - order your labels from them - they are less than any others we have used and their service is amazing!
In the summer or 2007, I heard a radio advertisement requesting nonprofit organizations contact our United Way to obtain the volunteers needed for projects for one day. We knew there was a project that we could untilize volunteers but we also wanted a project which would give back to the community. Breath of Hope had been supplied infant hand print kits for our Expectant/New Parent Packages by individual Board Members and myself. We had found a wholesaler which we could purchase these kits for approximately $5 each. We knew we could assemble them using containers and paris of plaster for less than $5 each. In fact, the total cost per kit with labels, ziplock bags and instructions are at a cost of about $1.25 each, far less than the cost we were paying.
We also had all our printed materials reviewed and edited by the University of Virginia's NICU staff lead by Robert Sinkin, MD and felt we should give back to them. On average, 450 infants are admitted each and every year at the NICU there. Today, a hand print kit is supplied to each and every family who has their baby admitted there. The remaining are used in Breath of Hope's packages and we have had extra to help send to Project Sweet Peas Projects around the country.
This year we had an amazing group of volunteers from CFA Institute and Banana Republic of Barracks Road come and learn about congenital diaphragmatic hernia, Breath of Hope and help us assemble another 500 hand print kits. And they see the results which we provide the UVA NICU. We know that families throughout the area benefit from these simple kits. We also know the staff at UVA's NICU enjoy giving this small token to families in order to capture their child's first days here on earth.
We thank the volunteers, the Thomas Jefferson Area's United Way (Shaele Wood should receive a metal for her coordination each and every year), PRA International for providing the space to complete this project and the UVA NICU for the inspiration, help and assistance to complete this project for three years.
Next year will be the 20th year of the United Way Day of Caring here in this area. Twenty years of helping other nonprofits and organizations have volunteers provided so they can help others. By giving, you give and get and it is returned,
We would also like to promote a wonderful Printer we used this year - their service and quality are amazing! With very short notice we were able to get our labels and they went over and above the call of duty! Lepin' Lizard Labels - order your labels from them - they are less than any others we have used and their service is amazing!
Monday, September 13, 2010
Two Days Left - Bidding Ends September 15th at 11 PM ET
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ONLY 2 Days Left to Bid!!!
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Breath of Hope, Inc
Saturday, September 11, 2010
Friday, August 27, 2010
Show Us Your Support!
Beginning on September 1, 2010, Breath of Hope, Inc will be holding an online auction to raise much needed funds.
We need your support!
We're asking you to participate in one of the following ways...
How You Can Help:
Donate.
We need Auction items to add to our auction. If you have valuable merchandise, rare collectibles, business or personal services or access to unique events, we need your contribution today. Click here to Donate.
Be a Sponsor.
Contact us at breathofhopeinc@ biddingforgood.org or 888-264-2340 to take advantage of promotional opportunities for your business or to pledge your individual support.
Tell Your Friends.
Do you know someone who would be interested in supporting our cause? Please share the news of the online auction with your friends so they can be part of the excitement. Refer a Friend to our auction so they can get involved.
Thank you in advance for your continued support! We look forward to your item donation and online bids!
We need your support!
We're asking you to participate in one of the following ways...
How You Can Help:
Donate.
We need Auction items to add to our auction. If you have valuable merchandise, rare collectibles, business or personal services or access to unique events, we need your contribution today. Click here to Donate.
Be a Sponsor.
Contact us at breathofhopeinc@
Tell Your Friends.
Do you know someone who would be interested in supporting our cause? Please share the news of the online auction with your friends so they can be part of the excitement. Refer a Friend to our auction so they can get involved.
Thank you in advance for your continued support! We look forward to your item donation and online bids!
Friday, August 20, 2010
PRESS RELEASE: 2010 Breath of Hope Scholaships Awards Announced
For More Information Contact:
Breath of Hope, Inc. 1-888-264-2340
Website: www.breathofhopeinc.com
Breath of Hope, Inc. 1-888-264-2340
Website: www.breathofhopeinc.com
BREATH OF HOPE, INCORPORATED SCHOLARSHIP AWARDS
ANNOUNCEMENT
ANNOUNCEMENT
Breath of Hope, Inc. (BoH) a 501 c 3 nonprofit public charity is pleased to announce the following
scholarship awards to the following individuals:
- Devin Dye of LeRoy, West Virginia is the recipient of the Miracle Scholarship which will be applied to his education at West Virginia University
- Lauren M. Real of San Carlos, California is the recipient of the Miracle Scholarship which will be applied to her education at California State University
- Erin McInnis of Madison, Mississippi is the of the Hope Scholarship which will be applied to her education at Harding University
- Jacob Boyd Womack of Madison, Mississippi is the recipient of Beyond Measure Scholarship which will be applied to his education at Mississippi University
- Alex Mourtsen of Flagstaff, Arizona is the recipient of the Miracle Scholarship which will be sent to further his education at Northern Arizona University
To learn more about Breath of Hope, please visit: www.breathofhopeinc.com call them toll-free at 1-888-264-2340.
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