Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Monday, March 31, 2008


We ask that you tell someone about congenital diaphragmatic hernia - send them our link here or to our website share some of the stories you know, the blogs or Carepages.

Congenital Diaphragmatic Hernia occurs 1 in 2,000 births in the United States and Hospitals and Medical Centers around the US have commented that it appears that it has increased. Each person who knows about this birth defect will be educated. More awareness will mean more education. More awareness and education will bring more funding for research. More research brings perhaps better treatments and possibly finding the cause or perhaps what might be a cause.

Thirty US States have proclaimed March 31, 2008 as Congenital Diaphragmatic Hernia Awareness Day - dozens of Cities and Towns and the Country of Mexico. This is a awesome start - and we will just as these CDH children and families will not be counted out - we will continue until the Turquoise Ribbon is as common as the Pink Ribbon - which is also a wonderful cause!

If you want to do something simple - light a candle at 7 PM your time and extinguish it at 8 PM. In honor and celebration of the children that survive this devastating birth defect, in honor of the families affected by it and in memory of the children who decided wings would be more fun then feet. (They are our heroes!)


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