Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Friday, July 31, 2009

Congenital Diaphragmatic Hernia (CDH) Awareness - Breath of Hope Website

Our website Congenital Diaphragmatic Hernia (CDH) Awareness - Breath of Hope, Inc has been updated. We have gone from six (6) pages to twenty-five (25) including this blog as a "Page" on the website.

In order not to duplicate information on the blog and on the website we will be streamlining this blog a little bit.

One page, Community Links, is "Soon to Come" we want to have blogs and websites from all those out there who have had children or been touched by CDH listed there. Please email us at if you would like your blog or website listed.

We will also be offering Ad Space (subject to approval of our Board of Directors) on the site in an effort to support the website expenses, program expenses and medical research that may benefit congenital diaphragmatic hernia.

Much of the information on the website added was taken from our printed materials so it has been reviewed by doctors and staff at the University of Virginia Medical Center Children's Medical Center. We also have had many parents, other health care professionals and outsiders review our materials and we have taken their suggestions to improve our materials for all.

Steve Berry of Denver Website Design originally took the website from a Flash Website to include more. A month ago he came to us saying he wanted to help us take it to a new level of functionality. We believe he has in this latest renovation. This new site, we will be able to update ourselves and add pictures to all the scrolls of the site. We want to thank Steve for his donation in-kind for a good portion of work that was done and is still doing to work out all the backend kinks!

As always - if anyone has any suggestions, we welcome them!

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