Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Monday, November 23, 2009

CDH Awareness Fundraiser

Families are always so affected by the birth of a CDH baby. Not just the immediate family. Sometimes it takes something as devastating as congenital diaphragmatic hernia to bring a family together, make others realize what is truly important.

It may be the parents who daily have to make the tough decisions but it is those who were raised with us, who we are raising who see the profound change and heart ache and feel sometimes utterly helpless to what the parents are going through and what their child is going through too.

One of our families has had an angel join the others recently and this little angel's Aunt felt she had to do something, help raise awareness of this rarely heard of birth defect which occurs just as often as many more commonly heard of birth defects.

Shannon has put together this fundraiser - so if you are in this area - please consider attending. It would be a great way to end your Black Friday Shopping Day in the area!

CDH Awareness Fundraiser

November 27, 2009 3-9pm
At Pizza Barn in Gardnerville, NV
Please join us in this event
To Raise Awareness of CDH
In the Memory Of
Michael Joseph Skaggs

Donations can be made at
Wells Fargo Acct.#5053066451

Click here for more details.

There will also be a walk in March 2010!

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