Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Tuesday, March 30, 2010

What to Do for Congenital Diaphragmatic Hernia Awareness Day...

Have no plans for Congenital Diaphragmatic Hernia Day – other than wearing turquoise?  Here are some simple things that you can do:
  • Have a candle lighting ceremony – light your candle(s) at 7 PM your time and extinguish them at 8 PM just as you would for International Children’s Memorial Day or Pregnancy and Infant Loss Awareness Day.  Send thoughts or say a prayer for all those affected by CDH.
  • Tell one person about congenital diaphragmatic hernia.
  • Donate blood, if you can.
  • Print off cards with the description or definition of CDH and hand them out randomly – better yet –   do random acts of kindness and hand the card to those you do your good deed for!
  • Post on your blog, carepage or website about Congenital Diaphragmatic Hernia Awareness Day.  Better – turn it turquoise if you can or put one of the Turquoise Awareness Ribbons on your site!
  •  Turn your profile on Facebook or anywhere else Turquoise for the day – or use one of our ribbons!

Have fun!  This should be a day of joy – it is a day we can celebrate awareness of this birth defect – though we always spread the word – this day is something that has been recognized by 34 Governors and States and will soon be recognized by the United States!
We are not stopping this effort – our goal has always been and will always be to have all 50 States Issue Proclamations and for countries to also issue Proclamations too. 

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