Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Tuesday, June 22, 2010

The "Doers" of Congenital Diaphragmatic Hernia Awareness

It is not the critic who counts: not the man who points out how the strong man stumbles or where the doer of deeds could have done better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood who strives valiantly, who errs and comes up sort again and again, because there is no effort without error or shortcoming, but who knows the great enthusiasms, the great devotions, who spends himself for a worthy cause; who at the best, knows in the end the triumph of high achievement, and who, at the worst, if he fails, at least he fails while daring greatly, so that his place shall never be with those colds and timid souls who knew neither victory nor defeat. - Teddy Roosevelt

This quote reminded me of not only the work we do to help families, we give them hope and follow their stories each different.  As parents we don't always have the answers, we are lost, we stumble and then we also learn.  As an organization we have learned along the way and we keep moving forward.  We have had some great victories with Congenital Diaphragmatic Hernia Awareness Day and educated many and many more are out there to educate.  It doesn't end with Resolution 204, it will continue until we can have not only the Senate issue a resolution but the House too - and the President sign it - to make March 31 a day we all celebrate that we raise awareness each and every day.

The quote above also reminds me of the health professionals and researchers who are on the front lines trying to overcome this birth defect.  Searching for better treatments, sometimes they are frustrated along the way.  Half of their patients die after fight valiant fights.  If they fail - they fail while daring greatly.  In their failure is also victory.  Each and every CDH case gets us one step forward.

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