Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Wednesday, March 16, 2011

Turquoise Spread to the White House

On March 15, 2011 one of our amazing Turquoise Warriors had her "wish" from Make A Wish Foundation granted.  Most 4 year olds would request a trip to Disney, meeting Dora the Explorer or even today, Hanna Montanna not this amazing girl.  She wished to meet President Barack Obama.  

Her mother reported the day was better than expected.  They were able to bowl a frame at the White House Bowling Alley, Kennedy got to play with Bo, the Presidential Dog and  she entertained the Secret Service!  When she met the  President, she gave him a hug and some Turquoise to wear.  President Obama put on one of our wristbands we sent to this amazing family.  

We know the President was probably very aware of congenital diaphragmatic hernia, thanks to all the efforts from families and individuals out there making requests of their states and localities to issue Proclamations and Resolutions for March 31st to be CDH Awareness Day for now 4 years in a row and Senate Resolution 204 passed without amendment.

Congenital Diaphragmatic Hernia Awareness Day is bi-partisan - please do not think this little girl's wish, or this posting is nothing more than celebrating further awareness of this devastating birth defect.  Each effort, no matter how big or small is important.  

As one of our parents said, "If you're cool enough to be wearing a Breath of Hope turquoise're cool enough to hang with the President of the USA! He's sporting his NOW!! How exciting for the CDH world!!!"  

Or just maybe he is cool enough to hang with all of us!

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