Please sign up here so we can have an accurate headcount and below is the tentitve agenda:
Wednesday June 27th
9:30am-10:30am Dr. Jason Gien-CDH/PPHN Research Doctor for University of Colorado/Children's Hospital Colorado
9:30am-10:30am Dr. Jason Gien-CDH/PPHN Research Doctor for University of Colorado/Children's Hospital Colorado
11am-12noon Susan Marshall Dietician/Nutritionalist from Children's Hospital Colorado (CDH nutrional info followed by Q&A)
Lunch 12-1pm
1pm-5pm Museum of Nature & Science followed by dinner (we can pick a place and invite families to join us or families can do dinner on their own)
Thursday June 28th
9:30am-10:30am NICU social worker (Name TBD)
10:30am-11am Katie Edic, CDH survivor share her story.
11am-12noon Dr. Crombleholme Fetal Surgeon (This is still being confirmed so times may change) CROMBLEHOLME HAS BEEN CONFIRMED
12noon-1pm Dr. Jason Gien CDH Pediatrician specializing in following CDH children in clinic and long term effects/complications of CDH (this specific topic and time is flexible but it's very important to discuss the long-term care of CDH children)
4pm-8pm Family Dinner/Fundraiser at Cici's Pizza
Friday June 29th
9:30am-10:30am Liz McKelvey NICU Nurse (specialized with CDH babies followed by Q&A)
10:30am – 11:30am Dhreams Presentation (Columbia University) Julia Wynn
11:30am-12noon Fetal Maternal Center & NICU Tour
1pm Zoo (if not attainable, Cherry Creek reservoir picnic pavilion for lunch, volley ball, and fun for all)
**Butterfly release will be scheduled for one of these days!**
Updated May 21, 2012 – still working on details and there could be adjustments to the schedule.
