Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Thursday, May 31, 2012

3rd Annual CDH Summit in Aurora, CO

Our third annual summit will be held in Colorado this year.  The dates are:  Wednesday, June 27, Thursday, June 28 and Friday, June 29th.  Hotel reservations must be made by June 5, 2012.

Please sign up here so we can have an accurate headcount and below is the tentitve agenda:

Wednesday June 27th
9:30am-10:30am Dr. Jason Gien-CDH/PPHN Research Doctor for University of Colorado/Children's Hospital Colorado

11am-12noon Susan Marshall Dietician/Nutritionalist from Children's Hospital Colorado (CDH nutrional info followed by Q&A)

Lunch 12-1pm

1pm-5pm Museum of Nature & Science followed by dinner (we can pick a place and invite families to join us or families can do dinner on their own)

Thursday June 28th
9:30am-10:30am NICU social worker (Name TBD)

10:30am-11am Katie Edic, CDH survivor share her story.
11am-12noon Dr. Crombleholme Fetal Surgeon (This is still being confirmed so times may change) CROMBLEHOLME HAS BEEN CONFIRMED

12noon-1pm Dr. Jason Gien CDH Pediatrician specializing in following CDH children in clinic and long term effects/complications of CDH (this specific topic and time is flexible but it's very important to discuss the long-term care of CDH children)

4pm-8pm Family Dinner/Fundraiser at Cici's Pizza

Friday June 29th

9:30am-10:30am Liz McKelvey NICU Nurse (specialized with CDH babies followed by Q&A)

10:30am – 11:30am Dhreams Presentation (Columbia University) Julia Wynn

11:30am-12noon Fetal Maternal Center & NICU Tour

1pm Zoo (if not attainable, Cherry Creek reservoir picnic pavilion for lunch, volley ball, and fun for all)

**Butterfly release will be scheduled for one of these days!**

Updated May 21, 2012 – still working on details and there could be adjustments to the schedule.

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