Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Saturday, November 3, 2007

Congenital Diaphragmatic Hernia AwarenessTM ~ How to Help!

If you want to help, go to our website at

There is a tab that will take you to Awareness information. We have a sample letter and Sample Proclamations to send to Mayors and Governors. Please note that we have had the following states Proclaim March 31, 2008 Congenital Diaphragmatic Hernia Awareness DayTM:

Virginia - to be issued in January 2008
New Hampshire - to be issued in the coming weeks

We have also had the following cities:

Charlotte, North Carolina
Cincinnati, Ohio

Please don't think you can not help if your state or city is listed - this is going to be an ongoing grass roots effort! I am even starting in my area to coordinate events and activities to be done so more people are AWARE! Each person I speak with - is aware now! Raising awareness can be a slow process - but if we all ban together to do this - it WILL be done.

Tony - this is for you - I would be happy to send you the documents - please contact us at: or

Thank you!
Every Breath They Take Is Our Breath of Hope

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