Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective

KSDK.com News Report of Saint Louis Children's Hospital Press Conference

Monday, November 26, 2007

Congenital Diaphragmatic Hernia Awarness TM Day Update

Breath of Hope ~ Congenital Diaphragmatic Hernia Awareness TM

Update on the States that have so far issued Proclamations or have confirmed that they will. These are the States that have done so:

Mississippi
Iowa
Pennsylvania
Virginia - pending
Maryland
Nebraska
New Hampshire
Alabama
Georgia
Michigan
Maine
Wisconsin
Indiana
Connecticut

We just heard from a member in Oregon and she is sending them their request of the file of the Proclamation so they don't have to re-type it! YEAH!

That will be 15 of 50 - this is a fantastic start!

If interested and your state is not listed please go to the Breath of Hope website and click on the Awareness tab! Information is there and you can contact us at cdhawareness@breathofhopeinc.com and we will be happy to take your information and send you the sample letter and sample Proclamation!

Many of our members are also planning Awareness Events in their communities on March 31, 2008 - including wearing turquoise for the day - a very powerful message to send for Congenital Diaphragmatic Hernia Awareness TM....

No comments: