Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Sunday, December 2, 2007

Congenital Diaphragmatic Hernia Awareness - First Step, Second Step & Beyond....

The first step toward change is awareness. The second step is acceptance. ~ Nathaniel Branden

Breath of Hope is seeking to change the simple fact that many people do not know about Congenital Diaphragmatic Hernia a birth defect which will be diagnosed to 5 families in the United States alone every day. Devastating statistics even more devastating to the individuals and families that this birth defect affects.

When an unborn child is diagnosed with this condition - many Moms and Dads first hear what doctors have to tell them about congenital diaphragmatic hernia - they are made aware. The second thing they do is scour the Internet for information. Much of it should be dismissed because it is about a child who was treated and became an angel more than 5 years ago - and treatment has changed. They accept that this could take their unborn child's life. Or in some cases their new born child's life.

Breath of Hope's first step is to raise awareness to all about this gruesome birth defect. Through raising awareness - there will be more research, more families that are prepared and know of this birth defect and less will have to be explained.

We now have the following states that have Proclaimed March 31, 2008 as Congenital Diaphragmatic Hernia AwarenessTM Day:

Virginia - pending
New Hampshire
Oregon - pending

If interested in writing your State or City or Town, please contact us and we will send you a Sample Proclamation and a Letter you can tailor with your own information. By obtaining a Proclamation by each state and soon Country we will be spreading the word and making all aware of Congenital Diaphragmatic Hernia.

When diagnosed - these families may have heard of it and know that they are not alone and there is support.

Every Breath They Take Is Our Breath of Hope!

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