Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective

KSDK.com News Report of Saint Louis Children's Hospital Press Conference

Sunday, December 23, 2007

Senator Hillary Clinton ~ Informed of Congenital Diaphragmatic Hernia AwarenessTM & Breath of Hope



This week as I posted, Terri (Ava's Mommy) was able to attend a speech which Senator Hillary Clinton made in Iowa. Terri was able to speak with Senator Clinton for a few moments and told her of Ava, Congenital Diaphragmatic Hernia, Congenital Diaphragmatic Hernia AwarenessTM Day and that Iowa had issued a Proclamation.


Please note - not political here - this is just about raising Awareness for this birth defect that affects 1 in 2,000 births here in the United States, which translates to almost 5 families every week hearing their child has this birth defect. At the moment of diagnoses - that is usually the FIRST TIME anyone hears of it - Breath of Hope is seeking to change that fact!


And Thank You Senator Clinton and all others out there that have accepted our information, issued Proclamations and are making note that we are making a difference and changing things!

Terri, thank you and your sister and your family for letting you go out and raise Awareness - they are also key in this too!

Breath of Hope, Inc. is a public non-profit organization does not endorse candidates for any office.

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