Doctors, Families Rally for Cure for Deadly Birth Defect
Parent's Perspective
KSDK.com News Report of Saint Louis Children's Hospital Press Conference
Thursday, December 23, 2010
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Links to Congenital Diaphragmatic Hernia in the News
- A Day for "Turquoise" - Gasconade County Republican Newspaper
- Birthday confounds the Experts
- Blue Hue Fills The Halls
- Chesterton Girl Survives Congenital Diaphragmatic Hernia
- Features at Saint Louis Children's Hospital
- Group Supports Breath of Hope for Babies Fighting a Deadly Condition
- Guardian.co.uk - Associated Press - St. Louis to Study Birth Defect
- Heart to Heart - Ronald McDonald House of Ann Arbor Newsletter - Turquoise for Awareness Day
- News Release March 31, 2009 - Saint Louis Children's Hospital
- North County Times - AP Article on St. Louis Hospital to Study CDH
- Quincy Family Raising Awareness of Birth Defect that Led to the Death of Infant Son
- Raising Awareness about CDH
- Red Cross Blood Drive - August 11 in Honor of Jaslyn Parker
- The News Gazette Article - Grieving Parents Raise Money and Awareness to Fight Birth Defect
- UVA Health System LINK Newsletter - CDH Proclamation Donated
- Warren County NJ News - Baby with Congenital Diaphragmatic Hernia Comes Home to Hamption after 223 Days in Hospital
- Wounds That Never Heal
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Breath of Hope's Congenital Diaphragmatic Hernia Awareness™ Campaign
Breath of Hope Yahoo Listserv
Breath of Hope's Cafe Press Store - Awareness Day Merchandise!
Congenital Diaphragmatic Hernia Research
- Baylor College of Medicine - Daryl A. Scott, MD/PhD
- Birth Defects.org - Research on Birth Defects and Environmental Exposures
- CDH Study Group - Compiling Accurate Data
- Dhreams - Diaphragmatic Hernia Research & Exploration, Advancing Molecular Science
- Mass General Hospital & Boston Children's CDH Research Study
- UCSF Medical Research - Fetal Surgery CDH
For Special Kids - Helpful Things - Retail
- Baby Growth Chart
- Complex Child E-Magazine
- JustMeAndE
- KCRCF Feeding Program
- My Forever Child - Infant Loss Gifts
- Princess Projects - Giving Girls Who Face Challenges the Attitude of a Princess!
- Special Needs Toys - Teaching, Therapy
- The Scholiosis Foundation
- Tummy Tunnels - Solution for Tube Fed Kids
CDH Links
- Breath of Hope
- Brigham & Womans - NICU TERMS
- Brown - Fetal Treatment Program - CDH
- Brown - Woman & Infant's Hospital of Rhode Island
- CDH Press Conference at Saint Louis Childrens Hospital - March 31, 2009
- CDH Walk of Hope
- Children's Hospital of Philadelphia - Fetal Diagnosis
- Congenital Diaphragmatic Hernia Tribute ~ By Carrie, Noah's Mommy
- Dhreams - Diaphragmatic Hernia Research & Exploration, Advancing Molecular Science
- ECMO Support
- Fetal Care Center of Cincinnati
- Global CDH - NJ Nonprofit Organization
- Harvard - Fetal MRI - Congenital Diaphratmatic Hernia
- IBIS-Birth Defect - CDH
- Keeping Hope Strong - Rochester, NY
- Lucile Packard Children's Hospital at Stanford - CDH
- MedHelp.org - Forum for Questions to be Answered by Surgeons from CHOP
- NEO Reviews - Cutting Edge Neonatology
- NORD - National Organization for Rare Disorders
- Now I Lay Me Down to Sleep
- Paradigm Health - Intensive Care Publications & White Papers
- Parker Reese Foundation - Based in North Carolina
- Pheonix Children's Hospital
- Post Discharge Follow-up of Infants with Congenital Diaphragmatic Hernia
- Real Hope for CDH - Kays Kids
- Revatio - Great Way to Understand Pulmonary Hypertention
- Saint Louis Children's Hospital
- Stem Cell News.com
- UCSF Medical Center - CDH
- University of Michigan - Congenital Diaphragmatc Hernia
- UVA - Diaphragmatic Hernia
- UVA Medical Center - Pediatric Surgery
- Your Surgery - Best View for CDH - to understand residual issues...
Support Links
- A Heartbreaking Choice
- Baby Center Board - for those that choose to Birth Early
- Band of Parents - Raising Funds for Neuroblastoma - A Rare Cancer
- Bereavement Publications
- Caringbridge - Grief Publications
- CDC - Valuable Link to Track Flu and RSV
- Compassionate Friends - Supporting Family After a Child Dies
- Cornlia de Lange Syndrome Foundation, Inc.
- Empty Cradles - Grief Support
- KCRCF Feeding Program
- Little Angels Online - Rememberance - Memorial
- Medical Alert bracelets and MORE
- National Downs Syndrome Society
- Perinatalhospice.org
- Scholiosis Research Society
- United Way Thomas Jefferson Area
- Waiting With Gabriel
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