Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Sunday, August 7, 2011

Have You Had to Explain CDH to a Health Professional?

We are requesting any family member or caregiver who has had to explain congenital diaphragmatic hernia to a health professional, to please contact us at with your "testimonial".  We are working on grants and intend to use these testimonials to show that not only the general public needs to be made aware of CDH but health professionals too.
It is shocking for parents to take their CDH survivor to an ER and have to explain their child's health history, this could be a matter of life or death.  It is unnerving that some parents have had to explain CDH to an ultrasound tech or an OB doctor.  This needs to change.  It could be a matter of life or death.

If you have such an experience, please contact us so we can make this change!

Thank you!

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