Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Sunday, January 5, 2014

7th Annual Congenital Diaphragmatic Hernia Awareness Day 2014

Since 2007, Breath of Hope launched the first campaign for congenital diaphragmatic hernia awareness.  We were taking a risk, we had no idea how it would do or how it would be received by our supporters or the general public.  That first year we had 34 states and hundreds of localities issue Proclamations/Resolutions to those who requested them.  All we asked for is a picture or scan of the document.  The document is the for those who make the request to keep. 

Many used their Proclamations to have events, contact their local media and write their local papers to educate their communities on congenital diaphragmatic hernia.  It is a platform given to tell your story.  Each year we continue to have friends and family write their Governors to request March 31st be proclaimed Congenital Diaphragmatic Hernia Awareness Day™.  

In 2010, The United States Senate passed a resolution for March 31st to be Congenital Diaphragmatic Hernia Awareness Day, with many thanks from our supporters and a few special supporters who had connections.  

March 31st is not a day we chose lightly.  It was a day which at that time, we knew of no other CDH child to have been born or chose wings.  It was a day at that time we chose to make special.  The turquoise ribbons was chosen for the symbolic reasons, it is a neutral color and anyone can find turquoise or teal in their wardrobe to wear.  

If you would like the documents to request your State, city or community proclaim March 31, 2014 as Congenital Diaphragmatic Hernia Awareness Day, please email us at - we will provide the documents and answer any questions you have!  

If your Governor and Mayor are not newly elected, you can send your requests in now.  If your Governor or Mayor was elected in the last election, please wait until their inauguration before sending the requests addressed to them.  You may also be able to make this request on-line or through email. 

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