Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Saturday, January 25, 2014

We Need More CDH Organizations

Did you know that according to Guidestar there are only three nonprofit organizations for congenital diaphragmatic hernia?  Guidestar may not have new charitable organizations listed or those who have not submitted their information.  How many organizations are there for spina bifida?  One hundred and fifty-four listed in Guidestar and two hundred and ten for cystic fibrosis.  Ask yourself this question, why are more in your communities not aware of CDH? 

What truly is the problem?  

We need more community organizations who work within their areas and with their hospitals to help families and further research from all over.  Local organizations can give back within their own communities and are more aware of what families will need when faced having a CDH baby.  They can outreach to other community organizations for help and resources and work with the hospitals and physicians in their areas.  

Breath of Hope will continue to provide the services we do and the programs we have but we will also be working to help others start up their organizations if they have the desire, enthusiasm and commitment to do so.  Please feel free to contact us at and we will be happy to help you!  

Enthusiasm is one of the most powerful engines of success. When you do a thing, do it with all your might. Put your whole soul into it. Stamp it with your own personality. Be active, be energetic, be enthusiastic and faithful, and you will accomplish your object. Nothing great was ever achieved without enthusiasm. ― Ralph Waldo Emerson

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