Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective News Report of Saint Louis Children's Hospital Press Conference

Sunday, January 11, 2015

Kindness Project - In Honor or Memory of CDH Children

Recently, the CDH Community as a whole has been rocked by the untimely deaths of children who were older than infants who had fought the good fight and been discharged from the NICU.  Unfortunately, RSV and other issues associated with hospital stays contributed to these children's deaths and we all step back and realize how far reaching congenital diaphragmatic hernia actual is to those who continue to fight it.

The world also has been racked with so much tragedy, too much meanness and too much that we wonder about humanity.  We are devastated to hear of other terror attacks of nations divided on issues that truly we need to ban together if we want solutions.  Pointing fingers does no one any good and only through dialog and being kind and compassionate can we make a difference in this world.

So we thought of an idea, we shared it with other CDH groups and we thought it would give our community members something to actually do that would help spread kindness and also a bit of CDH Awareness in the process too! 

Here is the basic outline of the project and you all can do it as simply or as elaborately as you wish!  You can do it as an individual or get others in your community or schools to help if you wish.  Do a random act of kindness and pass out a card to that person you do it for.  You can do it anonymously if you wish!  Then tell us about it.  As much as you wish or that a random act was done today in Anytown, USA :)  We would love to be overwhelmed with emails or posts to our Facebook Page or messages about your random acts.  You can do this in honor or memory of a child you know and at anytime you wish:  for Awareness Day, for your child's Birthday, for a date or period of time you wish.  It is in your hands to be as organized or as disorganized about it as you wish.  Kindness doesn't have to be organized! 

We provide you materials here that you can use and the Word Documents can be modified and updated to personalize.  The Business Cards we used are from Staples located here but we are positive you can find these at any other office supply store.  If for some reason, you have trouble, need another template or need help with this, please feel free to contact - we will be happy to help! 

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