Friday, June 25, 2010
Quote about Pediatric Medicine...
"These are tiny humans. These are children. They believe in magic, they play pretend, there is fairy dust in their IV bags and they cross their fingers and they make wishes and that makes them more resilient than adults. They recover faster, survive worse. they believe. In Peds, we have miracles and magic and in Peds, anything is possible." ~ Grey's Anatomy
Tuesday, June 22, 2010
The "Doers" of Congenital Diaphragmatic Hernia Awareness
It is not the critic who counts: not the man who points out how the strong man stumbles or where the doer of deeds could have done better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood who strives valiantly, who errs and comes up sort again and again, because there is no effort without error or shortcoming, but who knows the great enthusiasms, the great devotions, who spends himself for a worthy cause; who at the best, knows in the end the triumph of high achievement, and who, at the worst, if he fails, at least he fails while daring greatly, so that his place shall never be with those colds and timid souls who knew neither victory nor defeat. - Teddy Roosevelt
This quote reminded me of not only the work we do to help families, we give them hope and follow their stories each different. As parents we don't always have the answers, we are lost, we stumble and then we also learn. As an organization we have learned along the way and we keep moving forward. We have had some great victories with Congenital Diaphragmatic Hernia Awareness Day and educated many and many more are out there to educate. It doesn't end with Resolution 204, it will continue until we can have not only the Senate issue a resolution but the House too - and the President sign it - to make March 31 a day we all celebrate that we raise awareness each and every day.
The quote above also reminds me of the health professionals and researchers who are on the front lines trying to overcome this birth defect. Searching for better treatments, sometimes they are frustrated along the way. Half of their patients die after fight valiant fights. If they fail - they fail while daring greatly. In their failure is also victory. Each and every CDH case gets us one step forward.
This quote reminded me of not only the work we do to help families, we give them hope and follow their stories each different. As parents we don't always have the answers, we are lost, we stumble and then we also learn. As an organization we have learned along the way and we keep moving forward. We have had some great victories with Congenital Diaphragmatic Hernia Awareness Day and educated many and many more are out there to educate. It doesn't end with Resolution 204, it will continue until we can have not only the Senate issue a resolution but the House too - and the President sign it - to make March 31 a day we all celebrate that we raise awareness each and every day.
The quote above also reminds me of the health professionals and researchers who are on the front lines trying to overcome this birth defect. Searching for better treatments, sometimes they are frustrated along the way. Half of their patients die after fight valiant fights. If they fail - they fail while daring greatly. In their failure is also victory. Each and every CDH case gets us one step forward.
Saturday, June 19, 2010
Wishes all Fathers a Happy Father's Day!
When I was a boy of fourteen, my father was so ignorant I could hardly stand to have the old man around. But when I got to be twenty-one, I was astonished at how much he had learned in seven years. ~Mark Twain, "Old Times on the Mississippi" Atlantic Monthly, 1874
Dad, you're someone to look up to no matter how tall I've grown. ~Author Unknown
My father used to play with my brother and me in the yard. Mother would come out and say, "You're tearing up the grass." "We're not raising grass," Dad would reply. "We're raising boys." ~Harmon Killebrew
He didn't tell me how to live; he lived, and let me watch him do it. ~Clarence Budington Kelland
Dad, you're someone to look up to no matter how tall I've grown. ~Author Unknown
My father used to play with my brother and me in the yard. Mother would come out and say, "You're tearing up the grass." "We're not raising grass," Dad would reply. "We're raising boys." ~Harmon Killebrew
He didn't tell me how to live; he lived, and let me watch him do it. ~Clarence Budington Kelland
Wednesday, June 16, 2010
Breath of Hope is listed as a "Circle of Care" Donor
Breath of Hope is an organization that supports Medical Research which will assist in furthering the care of Congenital Diaphragmatic Hernia. We are not medical researchers, we are parents who run a very efficient nonprofit organization. Less than 18% of all revenue is used for Administrative costs. We continue to help support Medical Research and put funds to work to do this.
Wednesday, June 2, 2010
Breath of Hope Named to a List of Top-Rated Nonprofit Organizations
June 2, 2010
Breath of Hope has been named to a new list of top-rated nonprofits by GreatNonprofits, the leading provider of user reviews for nonprofit organizations.
The top-rated Women'e Empowerment nonprofits list is composed of organizations that have received at least ten positive reviews from stakeholders, such as volunteers, donors, or clients. Breath of Hope has received seventeen of reviews to date.
The reviews were posted as part of the Women's Empowerment campaign conducted by GreatNonprofits, in partnership with Guidestar and a coalition of nonprofit organizations. “We are gratified to be able to honor Breath of Hope for its work on congenital diaphragmatic hernia issues,” said Perla Ni, CEO of GreatNonprofits. “They deserve to be recognized for the support they have from their community of stakeholders.”
The entire list of top-rated Women's nonprofits is available at http://greatnonprofits.org/
The campaign was hosted by GreatNonprofits, Guidestar, and a coalition of other nonprofit organizations.
The success of the campaign and the diversity of organizations reviewed reflect the core of GreatNonprofits’ mission to bring visibility, transparency, and accountability to the sector and allow nonprofits to engage with their community in a different way.
All reviews appear on GreatNonprofits.org as well as GuideStar.org, the premiere source for donor research on nonprofits. Nonprofits with 10 or more positive reviews during the campaign are included on the GreatNonprofits Top-Rated Women's Nonprofits list.
Media Contact:
Elizabeth Doyle-Propst
elizabeth@breathofhopeinc.com
888-264-2340
Breath of Hope has been named to a new list of top-rated nonprofits by GreatNonprofits, the leading provider of user reviews for nonprofit organizations.
The top-rated Women'e Empowerment nonprofits list is composed of organizations that have received at least ten positive reviews from stakeholders, such as volunteers, donors, or clients. Breath of Hope has received seventeen of reviews to date.
The reviews were posted as part of the Women's Empowerment campaign conducted by GreatNonprofits, in partnership with Guidestar and a coalition of nonprofit organizations. “We are gratified to be able to honor Breath of Hope for its work on congenital diaphragmatic hernia issues,” said Perla Ni, CEO of GreatNonprofits. “They deserve to be recognized for the support they have from their community of stakeholders.”
The entire list of top-rated Women's nonprofits is available at http://greatnonprofits.org/
About the Campaign
The success of the campaign and the diversity of organizations reviewed reflect the core of GreatNonprofits’ mission to bring visibility, transparency, and accountability to the sector and allow nonprofits to engage with their community in a different way.
All reviews appear on GreatNonprofits.org as well as GuideStar.org, the premiere source for donor research on nonprofits. Nonprofits with 10 or more positive reviews during the campaign are included on the GreatNonprofits Top-Rated Women's Nonprofits list.
Media Contact:
Elizabeth Doyle-Propst
elizabeth@breathofhopeinc.com
888-264-2340
Monday, May 31, 2010
Memorial Day 2010
For love of country they accepted death... ~James A. Garfield
Death leaves a heartache no one can heal, love leaves a memory no one can steal. ~From a headstone in Ireland
The brave die never, though they sleep in dust:
Their courage nerves a thousand living men.
~Minot J. Savage
Their courage nerves a thousand living men.
~Minot J. Savage
And I'm proud to be an American,
where at least I know I'm free.
And I won't forget the men who died,
who gave that right to me.
~Lee Greenwood
where at least I know I'm free.
And I won't forget the men who died,
who gave that right to me.
~Lee Greenwood
Please remember this Memorial Day weekend, with the BBQs, Pool Openings and celebrations - is also a time to remember all those who gave their lives for the freedom we enjoy every day. Freedom comes with a price and many sacrificed their lives. Many families endure separation and many of them need to be honored and respected for their service.
Monday, May 24, 2010
Gigi Hill - Fundraiser for Entire Month of June
One of our fantastic Moms is doing a fundraiser for Breath of Hope for the entire month of June. Fifty percent of all sales will go to Breath of Hope. Great gifts for women - bridal showers, birthdays or just because - or maybe a new spring bag for yourself! Please go here to purchase! If you would like to host a party please feel free to contact Jennifer at jenniferzaranis@gmail.com
Wednesday, May 19, 2010
Jaxson's Jog - Fundraiser in Pennsylvania for CDH
Jaxson's Jog is a 10K & 5K Run plus a 2.5 Mile Walk in Support of Children with Congenital Diaphragmatic Hernia (CDH). Your registration makes a difference! All proceeds benefit Global CDH.
Summary of Race Details:
To make an online donation to Global CDH in the name of Jaxson's Jog, click here.
There are lots of ways to help – sponsor or make an individual donation, register as an individual or a team to run/walk, or make an in-kind donation of food or gift for the Chinese raffle. I hope you will strongly consider supporting the families and children with Congenital Diaphragmatic Hernia by participating in Jaxson’s Jog!
Happy Birthday Jaxson! We hope your day is wonderful!
Summary of Race Details:
- REGISTER online today, click here (note: registration says 1 mile walk, but it is 2 miles)
- Race date: Saturday, May 22, 2010
- Race location: North Park Boat House, Allison Park, PA 15101
- Race day registration from 7:30 am - 9:30 am
- 10K and 5K Race begins at 10 am; walkers follow
- Registration Fee: $20 for adult runners/walkers, $10 for youth (18 or younger)
- Course Info: For 5K course, click here; for 10K course click here
- Hotel: Holiday Inn Pitt North is offering a special rate of $79 - click here for details
- Stick around for the post-race festivities - awards and Chinese raffle
To make an online donation to Global CDH in the name of Jaxson's Jog, click here.
There are lots of ways to help – sponsor or make an individual donation, register as an individual or a team to run/walk, or make an in-kind donation of food or gift for the Chinese raffle. I hope you will strongly consider supporting the families and children with Congenital Diaphragmatic Hernia by participating in Jaxson’s Jog!
Happy Birthday Jaxson! We hope your day is wonderful!
Monday, May 17, 2010
2010 Congenital Diaphragmatic Hernia Summit
Will be in Philadelphia, Pennsylvania from June 23 - June 27. For more details please go to this link with the most complete and up-to-date information - LINK
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