Doctors, Families Rally for Cure for Deadly Birth Defect

Parent's Perspective

KSDK.com News Report of Saint Louis Children's Hospital Press Conference

Tuesday, September 25, 2007

Congenital Diaphragmatic Hernia Awareness Day TM is Announced


We have informed our members that Congenital Diaphragmatic Hernia Awareness Day has been launched. So far we have heard back from Mississippi and they signed the Proclamation and returned it! Iowa has contacted the Director who mailed it in and willing to sign it for the whole MONTH! We just heard from Pennsylvania too. Virginia will be sending it out in January.


A letter and a sample Proclamation and a forty-one cent stamp and we are working on cities and towns too! We have had a total of 15 so far send in these to their state, Commonwealth or Republic.


We are spreading awareness....


1 comment:

Unknown said...

Elizabeth,

Do you have a sample of the letter that we can send to representatives in Wisconsin? If so can you please post to your blog?

Thanks Tony