Thursday, December 23, 2010
Wednesday, December 15, 2010
Congenital Diaphragmatic Hernia Awareness Candles
We are taking pre-orders which will be available after the holidays but in time for Awareness Day - March 31st, 2011. We are still working on the pricing - we hope to keep under $10 each and this will not include shipping. If interested, please email us at elizabeth@breathofhopeinc.com - when available and we know more - we will contact you with all details.
Saturday, December 11, 2010
National (International) Children's Memorial Day - Sunday, December 12th
Breath of Hope would like to issue a challenge of sorts. If you know someone who has a child die from anything, you may have been at a loss of what to say or do for them - light a candle. You can further this by taking a picture of your candle and send them a message with the picture. Tell them you thought of them and their child. Trust us, this will mean the world to them! Thank you!
Thursday, December 2, 2010
Breath of Hope's Holiday Auction for CDH Awareness
Help us Turn the Corner!
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Want to Share the Fun?
Wednesday, December 1, 2010
Tuesday, November 23, 2010
Breath of Hope - Member Organization of NORD
NORD member organizations share the benefit of representation in Washington, DC, through the efforts of NORD's Vice President for Public Policy in its Washington office. They also receive frequent briefings from NORD on political and medical news, as well as guidance on topics related to accomplishing their organizational goals.
To view a list of current organization members with direct links to their websites, click here. (We just received notification via email today and are not currently listed but will be soon.)
Saturday, November 20, 2010
Breath of Hope's Holiday Auction for CDH Awareness
Starting on Friday, November 26th through December 10 Breath of Hope will be holding an online auction Fundraiser through Bidding for Good.
Items up for auction include U2 Tickets to a concert of your choice, Lady Gaga Tickets to a concert of choice, Restaurant.com Gift Certificates (wonderful item to have on hand to give as a gift or use yourself). Also up for action will be a Super Bowl Package, March Madness Final Four Package, A Trip for 2 for the Country Music Awards next November, Hot Air Balloon Rides Package and Top Gun - Fighter Pilot Experience for One Package. There are also many Art items, sports collectibles and more being added next week!
Proceeds to benefit our organization during tough economic times. We have not cut programs but it has been a very lean year. We are also offering gift cards to top referrals - so please feel free to log in and refer your friends and family!
Click here to preview, donate or sponsor: Breath of Hope's Holiday Auction for CDH Awareness
We would like to thank Berry Web Designs for sponsorship!
Thank you!
Items up for auction include U2 Tickets to a concert of your choice, Lady Gaga Tickets to a concert of choice, Restaurant.com Gift Certificates (wonderful item to have on hand to give as a gift or use yourself). Also up for action will be a Super Bowl Package, March Madness Final Four Package, A Trip for 2 for the Country Music Awards next November, Hot Air Balloon Rides Package and Top Gun - Fighter Pilot Experience for One Package. There are also many Art items, sports collectibles and more being added next week!
Proceeds to benefit our organization during tough economic times. We have not cut programs but it has been a very lean year. We are also offering gift cards to top referrals - so please feel free to log in and refer your friends and family!
Click here to preview, donate or sponsor: Breath of Hope's Holiday Auction for CDH Awareness
We would like to thank Berry Web Designs for sponsorship!
Thank you!
Saturday, November 13, 2010
Congenital Diaphragmatic Hernia Documented for 300 Years?
Congenital diaphragmatic hernia (CDH) was first described in 1679 by Lazarus Riverius who incidentally noted a CDH on a postmortem examination in a 24 year old.
Citation: The CDH study group and advances in the clinical care of the patient with congenital diaphragmatic hernia Nora M Doyle, Kevin P Lally Seminars in Perinatology - June 2004 (Vol. 28, Issue 3, Pages 174-184, DOI: 10.1053/j.semperi.2004.03.009)
In 1701, Sir Charles Holt described the classical clinical and postmortem findings of an infant with CDH in philosophical transactions of the Royal Society of London.
Citation: Weblink here
Updated: Jun 12, 2009
And:
In 1848, Victor Alexander Bochdalek, a professor of anatomy in Prague described both right and left posterolateral CDH. To this day, CDH commonly is referred to as a Bochdalek hernia in honor of Victor Bochdalek's contribution to this field. Citation: Weblink here
Not to dispute the findings and severe health crisis which HIV and AIDS has presented in this world, but in the last 20 years, the advances of care and maintaining health for those affected by HIV has evolved not to be a death sentence. First reported in the 1980s in the United States Citation Here: WebLink here
Congenital Diaphragmatic Hernia (CDH) has been reported, studied, evaluated, researched for the last 300 years and still to about 50% of those diagnosed overall it is a death sentence? A death sentence before their 1st birthday.
Everyone is aware of HIV, even those who have never directly encountered it. Not everyone is aware of CDH, only those who have directly encountered it. This needs to change.
The only way this can change is if we make our Government officials and the general public aware that CDH has been reported, diagnosed and treated for 300 years but no one is aware. If you would like to make your local, state or federal Representatives aware, educate the general public, take a hour of your time and write them. Request a sample letter and proclamation/resolution by contacting us at cdhawareness@breathofhopeinc.com, we will gladly send you the documents to do this.
Only when they are aware, when the general public becomes more aware will there be more research in order to bring the survival rates higher. When more are aware they will fund medical research for this birth defect. More will realize that survivors of CDH need specialized care and therapies early in order for these children to maintain health. Until we start with the first step, no one will listen. The first step is our elected officials and the general public.
It just is not acceptable for 300 years, CDH has been documented and the survival rates are still over all at 50%.
"Never doubt that a small group of thoughtful, committed people can change the world. Indeed, it is the only thing that ever has." - Margaret Mead
Sunday, October 31, 2010
2011 Faces of CDH Calendar & Breath of Hope's New Logo
The 2011 Faces of CDH Calendar is now available on Cafepress. If you go to this link - please consider going to Goodsearch - Good Shopping - a percent of your sale will go to Breath of Hope! The calendar comes in two sizes 17X11 for $19.99 and 11 X 8.5 for $16.99, both make excellent gifts!
Also today is the LAST DAY for FREE Shipping on all orders over $40.00 - the coupon code is NEWSHIP40
Click here to go directly to the Breath of Hope Cafepress Site - if you shop from Cafepress the prices are slightly more!
We are always honored by all the families who send in the photos of these amazing children. It truly is their faces that make these calendars so perfect! Thank you!
Also today is the LAST DAY for FREE Shipping on all orders over $40.00 - the coupon code is NEWSHIP40
Click here to go directly to the Breath of Hope Cafepress Site - if you shop from Cafepress the prices are slightly more!
We are always honored by all the families who send in the photos of these amazing children. It truly is their faces that make these calendars so perfect! Thank you!
Wednesday, October 27, 2010
Each Day 5 Infants are Diagnosed with CDH
Today almost 5 families in the United States alone will receive the devastating news that their unborn child will have to fight for its life. They have been diagnosed with a potentially fatal birth defect called a congenital diaphragmatic hernia. A congenital diaphragmatic hernia is where the diaphragm in development does not completely close in an unborn baby and organs migrate to the thorax which under normal circumstances is where the heart and developing lungs are located. This defect has a profound impact on lung function.
Thirty-five (35) families a week. One hundred fifty (150) families a month. 1800 families a year. Congenital diaphragmatic hernia occurs just as often as spina bifia and cystic fibrois yet most do not hear of it until their child is diagnosed.
It doesn't just affect the baby, the mother and the father – it affects the whole family and the entire community. This baby will need Intensive Medical Care at a level three NICU with ECMO. The medical bills will total hundreds of thousands and quite often, millions of dollars. These are million dollar babies. The care to save their lives depletes blood supplies at local blood banks – one infant required 6 gallons of blood and blood product in 38 days. Some families will be financially depleted due to the long term care of these children or other costs associated with one or both parents without a job. Without benefits, Medicaid takes over and covers costs. Some families require state and government assistance for short periods of time. This has an effect on communities. Some insurance companies have "Lifetime Caps" and these children reach them very quickly. These children require insurance to provide the therapy they need so that they can accelerate and thrive.
What can you do to help save these babies? What will help these families? What can you do to make a difference?
1. Learn about congenital diaphragmatic hernias.
2. Donate blood regularly, if you can, to your local blood centers to help ensure all patients receive the blood they need.
4. If you are looking for a cause to help with – we would welcome your assistance!
5. Wear turquoise on March 31, 2010 for Congenital Diaphragmatic Hernia Awareness Day! When someone asks what it's for – tell them! Or wear it every day! (Many of us do!)
written entirely by Elizabeth Doyle-Propst 10/27/2007
_____________________
Copyrighted - Breath of Hope Inc. - if you wish to use this - you can - just site the source!
Thirty-five (35) families a week. One hundred fifty (150) families a month. 1800 families a year. Congenital diaphragmatic hernia occurs just as often as spina bifia and cystic fibrois yet most do not hear of it until their child is diagnosed.
It doesn't just affect the baby, the mother and the father – it affects the whole family and the entire community. This baby will need Intensive Medical Care at a level three NICU with ECMO. The medical bills will total hundreds of thousands and quite often, millions of dollars. These are million dollar babies. The care to save their lives depletes blood supplies at local blood banks – one infant required 6 gallons of blood and blood product in 38 days. Some families will be financially depleted due to the long term care of these children or other costs associated with one or both parents without a job. Without benefits, Medicaid takes over and covers costs. Some families require state and government assistance for short periods of time. This has an effect on communities. Some insurance companies have "Lifetime Caps" and these children reach them very quickly. These children require insurance to provide the therapy they need so that they can accelerate and thrive.
What can you do to help save these babies? What will help these families? What can you do to make a difference?
1. Learn about congenital diaphragmatic hernias.
2. Donate blood regularly, if you can, to your local blood centers to help ensure all patients receive the blood they need.
4. If you are looking for a cause to help with – we would welcome your assistance!
5. Wear turquoise on March 31, 2010 for Congenital Diaphragmatic Hernia Awareness Day! When someone asks what it's for – tell them! Or wear it every day! (Many of us do!)
written entirely by Elizabeth Doyle-Propst 10/27/2007
_____________________
Copyrighted - Breath of Hope Inc. - if you wish to use this - you can - just site the source!
Thursday, October 14, 2010
Wave of Light - Pregnancy and Infant Loss Awareness Day - October 15th
On October 15th it is International Pregnancy and Infant Loss Awareness Day. On this day, please light a candle at 7 PM in your time zone and you can extinguish it at 8 PM. This will create a continuous wave of light around the world for the little angels to see from heaven.
For more information - click here
Tuesday, October 12, 2010
2nd Annual Cadan's Halloween Carnival - CDH Research Benefit!
More details are on Facebook - click here
Thank you!
Friday, October 1, 2010
Faces of CDH Calendar for 2011
We are taking photos for the Faces of CDH Awareness Calendar for 2011, this is the fourth year we have produced this calendar. Please send pictures to pictures@cdhawareness.org by October 15, we will provide a consent form.
Below are samples from our calendar this year. These make great gifts for under $20 and are wonderful to give friends, family and doctors or your favorite nurse.
Below are samples from our calendar this year. These make great gifts for under $20 and are wonderful to give friends, family and doctors or your favorite nurse.
Saturday, September 25, 2010
Thomas Jefferson Area United Way Day of Caring - Giving that Gives Back
Since 2007, Breath of Hope has participated in the Thomas Jefferson Area United Way's Laurence Richardson's Day of Caring. Each year, in September, the Central Virginia's United Way coordinates hundreds of projects for other nonprofits and schools in the area and provides thousands of volunteers to help. It is the time of year, other nonprofits and schools look forward to receiving volunteers to complete projects they otherwise could not have done without the human power required.
In the summer or 2007, I heard a radio advertisement requesting nonprofit organizations contact our United Way to obtain the volunteers needed for projects for one day. We knew there was a project that we could untilize volunteers but we also wanted a project which would give back to the community. Breath of Hope had been supplied infant hand print kits for our Expectant/New Parent Packages by individual Board Members and myself. We had found a wholesaler which we could purchase these kits for approximately $5 each. We knew we could assemble them using containers and paris of plaster for less than $5 each. In fact, the total cost per kit with labels, ziplock bags and instructions are at a cost of about $1.25 each, far less than the cost we were paying.
We also had all our printed materials reviewed and edited by the University of Virginia's NICU staff lead by Robert Sinkin, MD and felt we should give back to them. On average, 450 infants are admitted each and every year at the NICU there. Today, a hand print kit is supplied to each and every family who has their baby admitted there. The remaining are used in Breath of Hope's packages and we have had extra to help send to Project Sweet Peas Projects around the country.
This year we had an amazing group of volunteers from CFA Institute and Banana Republic of Barracks Road come and learn about congenital diaphragmatic hernia, Breath of Hope and help us assemble another 500 hand print kits. And they see the results which we provide the UVA NICU. We know that families throughout the area benefit from these simple kits. We also know the staff at UVA's NICU enjoy giving this small token to families in order to capture their child's first days here on earth.
We thank the volunteers, the Thomas Jefferson Area's United Way (Shaele Wood should receive a metal for her coordination each and every year), PRA International for providing the space to complete this project and the UVA NICU for the inspiration, help and assistance to complete this project for three years.
Next year will be the 20th year of the United Way Day of Caring here in this area. Twenty years of helping other nonprofits and organizations have volunteers provided so they can help others. By giving, you give and get and it is returned,
We would also like to promote a wonderful Printer we used this year - their service and quality are amazing! With very short notice we were able to get our labels and they went over and above the call of duty! Lepin' Lizard Labels - order your labels from them - they are less than any others we have used and their service is amazing!
In the summer or 2007, I heard a radio advertisement requesting nonprofit organizations contact our United Way to obtain the volunteers needed for projects for one day. We knew there was a project that we could untilize volunteers but we also wanted a project which would give back to the community. Breath of Hope had been supplied infant hand print kits for our Expectant/New Parent Packages by individual Board Members and myself. We had found a wholesaler which we could purchase these kits for approximately $5 each. We knew we could assemble them using containers and paris of plaster for less than $5 each. In fact, the total cost per kit with labels, ziplock bags and instructions are at a cost of about $1.25 each, far less than the cost we were paying.
We also had all our printed materials reviewed and edited by the University of Virginia's NICU staff lead by Robert Sinkin, MD and felt we should give back to them. On average, 450 infants are admitted each and every year at the NICU there. Today, a hand print kit is supplied to each and every family who has their baby admitted there. The remaining are used in Breath of Hope's packages and we have had extra to help send to Project Sweet Peas Projects around the country.
This year we had an amazing group of volunteers from CFA Institute and Banana Republic of Barracks Road come and learn about congenital diaphragmatic hernia, Breath of Hope and help us assemble another 500 hand print kits. And they see the results which we provide the UVA NICU. We know that families throughout the area benefit from these simple kits. We also know the staff at UVA's NICU enjoy giving this small token to families in order to capture their child's first days here on earth.
We thank the volunteers, the Thomas Jefferson Area's United Way (Shaele Wood should receive a metal for her coordination each and every year), PRA International for providing the space to complete this project and the UVA NICU for the inspiration, help and assistance to complete this project for three years.
Next year will be the 20th year of the United Way Day of Caring here in this area. Twenty years of helping other nonprofits and organizations have volunteers provided so they can help others. By giving, you give and get and it is returned,
We would also like to promote a wonderful Printer we used this year - their service and quality are amazing! With very short notice we were able to get our labels and they went over and above the call of duty! Lepin' Lizard Labels - order your labels from them - they are less than any others we have used and their service is amazing!
Monday, September 13, 2010
Two Days Left - Bidding Ends September 15th at 11 PM ET
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Breath of Hope, Inc
Saturday, September 11, 2010
Friday, August 27, 2010
Show Us Your Support!
Beginning on September 1, 2010, Breath of Hope, Inc will be holding an online auction to raise much needed funds.
We need your support!
We're asking you to participate in one of the following ways...
How You Can Help:
Donate.
We need Auction items to add to our auction. If you have valuable merchandise, rare collectibles, business or personal services or access to unique events, we need your contribution today. Click here to Donate.
Be a Sponsor.
Contact us at breathofhopeinc@
Tell Your Friends.
Do you know someone who would be interested in supporting our cause? Please share the news of the online auction with your friends so they can be part of the excitement. Refer a Friend to our auction so they can get involved.
Thank you in advance for your continued support! We look forward to your item donation and online bids!
We need your support!
We're asking you to participate in one of the following ways...
How You Can Help:
Donate.
We need Auction items to add to our auction. If you have valuable merchandise, rare collectibles, business or personal services or access to unique events, we need your contribution today. Click here to Donate.
Be a Sponsor.
Contact us at breathofhopeinc@
Tell Your Friends.
Do you know someone who would be interested in supporting our cause? Please share the news of the online auction with your friends so they can be part of the excitement. Refer a Friend to our auction so they can get involved.
Thank you in advance for your continued support! We look forward to your item donation and online bids!
Friday, August 20, 2010
PRESS RELEASE: 2010 Breath of Hope Scholaships Awards Announced
For More Information Contact:
Breath of Hope, Inc. 1-888-264-2340
Website: www.breathofhopeinc.com
Breath of Hope, Inc. 1-888-264-2340
Website: www.breathofhopeinc.com
BREATH OF HOPE, INCORPORATED SCHOLARSHIP AWARDS
ANNOUNCEMENT
ANNOUNCEMENT
Breath of Hope, Inc. (BoH) a 501 c 3 nonprofit public charity is pleased to announce the following
scholarship awards to the following individuals:
- Devin Dye of LeRoy, West Virginia is the recipient of the Miracle Scholarship which will be applied to his education at West Virginia University
- Lauren M. Real of San Carlos, California is the recipient of the Miracle Scholarship which will be applied to her education at California State University
- Erin McInnis of Madison, Mississippi is the of the Hope Scholarship which will be applied to her education at Harding University
- Jacob Boyd Womack of Madison, Mississippi is the recipient of Beyond Measure Scholarship which will be applied to his education at Mississippi University
- Alex Mourtsen of Flagstaff, Arizona is the recipient of the Miracle Scholarship which will be sent to further his education at Northern Arizona University
To learn more about Breath of Hope, please visit: www.breathofhopeinc.com call them toll-free at 1-888-264-2340.
Thursday, August 12, 2010
August 19 - A Day of Hope...
Many people don't want to talk about an infant that died. It is sad thing, but for the parents, grandparents and their sisters and brothers they do remember the joy, the hope and the beauty of that child who was theirs. These are miracles too and no one should be ashamed or embarrassed to talk of these amazing miracles who blessed this world for a short time.
On August 19 - it is a day of Hope and a day to remember and speak of these amazing angels.
Please feel free to visit here and be proud to display these beautiful photos in honor of these children and their families.
On August 19 - it is a day of Hope and a day to remember and speak of these amazing angels.
Please feel free to visit here and be proud to display these beautiful photos in honor of these children and their families.
Wednesday, July 21, 2010
Make Congenital Diaphragmatic Hernia Awareness Day 2011 in Your Area!
Every day you live you project congenital diaphragmatic hernia awareness. Sometimes you do this silently and sometimes very vocally. You always are aware and you wish all others would be too.
A parent of a child who is surviving this birth defect, your child does something you never thought they would do when they were in the NICU and it brings you to tears. “I never thought my child would ever color like others”. You savor every moment and you fear every turn that maybe you will wake from this dream and it will become a nightmare again.
As a parent of an angel who fought valiantly and chose wings, you see signs in the butterflies that land on your nose or the rainbow that suddenly fills the sky when you are at your bluest blue. Still these babies can make our heart soar. You savored each moment and treasure your memories.
Both know the real normal is just a setting on the washing machine. Both were shocked at the news that their infant had this birth defect that when laid out seemed bigger than they would ever be but they both fought like warriors we read of in novels. That alone makes us pick up and move forward, telling our stories to make others aware.
You tell others to educate them that congenital diaphragmatic hernia happens just as often as spina bifida, cystic fibrosis and congenital muscular dystrophy. Others have heard of those and know of them but few have still heard of CDH. Many dismiss it as a “hernia” and ignore the simple fact that still today over all the survival rates are 50%. You know that 1800 families each year have their child diagnosed just as you did. You know the fear, helplessness and hope these families go through each and every moment. You know what they will face.
This is why each year we ask our states and localities to issue a Proclamation for March 31st to be Congenital Diaphragmatic Hernia Awareness Day. It is a day to celebrate. It is another day to add to our own children’s birthday or birthday and angel day. It is a day to have our government officials to acknowledge that this birth defect still needs more education, awareness and more research to improve the survival rates, to lessen the residuals survivors and their families endure. We need more families to burst into tears when their child jumps for the first time because they once thought they never would.
Each year, more and more people are becoming aware – and it is because of the families who take an hour of their time to sit down, edit a letter and mail it with a sample proclamation and perhaps pictures of their own child. You then will receive this astounding document an acknowledgment that government works for the people, by the people and for you. You hold this tangible piece that states you made others aware that may never have been otherwise.
Please contact us at cdhawareness@breathofhopeinc.com for a sample letter and proclamation, we will be happy to send them to you and ask all you do, is send us a photo or a scan of the document when you receive it! When at times you have felt powerless in this journey with congenital diaphragmatic hernia, you have the power to do this!
Wednesday, July 7, 2010
Requesting Funds for Congenital Diaphragmatic Hernia Research & It Will Raise Awareness Too!
The New York City Marathon also attracts runners from all over the world, media from all over the world and spectators! Every cent raised by the runners on TEAM GCDH NYC Marathon will go to Dhreams - Diaphragmatic Hernia Research & Exploration. The runners are doing this for these children, families and to prove something to themselves - that they can reach from within and accomplish this without quiting - after all, these children are not given that choice.
Your donations are tax-deductible and every cent raised helps! You can donate at the link above for TEAM GCDH NYC Marathon to any runner or any of the organizations and indicate that the funds are to the NYC Marathon for CDH Research!
Shannon - thank you - and all the other runners too! Global CDH - thank you for this opportunity and may we all help raise some awareness and some funds for congenital diaphragmatic hernia medical research!
Tuesday, July 6, 2010
July 10th - Zumba for Congenital Diaphragmatic Hernia Awareness!
Thank you Sara (Joey's Mom) for organizing this event!
Friday, June 25, 2010
Quote about Pediatric Medicine...
"These are tiny humans. These are children. They believe in magic, they play pretend, there is fairy dust in their IV bags and they cross their fingers and they make wishes and that makes them more resilient than adults. They recover faster, survive worse. they believe. In Peds, we have miracles and magic and in Peds, anything is possible." ~ Grey's Anatomy
Tuesday, June 22, 2010
The "Doers" of Congenital Diaphragmatic Hernia Awareness
It is not the critic who counts: not the man who points out how the strong man stumbles or where the doer of deeds could have done better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood who strives valiantly, who errs and comes up sort again and again, because there is no effort without error or shortcoming, but who knows the great enthusiasms, the great devotions, who spends himself for a worthy cause; who at the best, knows in the end the triumph of high achievement, and who, at the worst, if he fails, at least he fails while daring greatly, so that his place shall never be with those colds and timid souls who knew neither victory nor defeat. - Teddy Roosevelt
This quote reminded me of not only the work we do to help families, we give them hope and follow their stories each different. As parents we don't always have the answers, we are lost, we stumble and then we also learn. As an organization we have learned along the way and we keep moving forward. We have had some great victories with Congenital Diaphragmatic Hernia Awareness Day and educated many and many more are out there to educate. It doesn't end with Resolution 204, it will continue until we can have not only the Senate issue a resolution but the House too - and the President sign it - to make March 31 a day we all celebrate that we raise awareness each and every day.
The quote above also reminds me of the health professionals and researchers who are on the front lines trying to overcome this birth defect. Searching for better treatments, sometimes they are frustrated along the way. Half of their patients die after fight valiant fights. If they fail - they fail while daring greatly. In their failure is also victory. Each and every CDH case gets us one step forward.
This quote reminded me of not only the work we do to help families, we give them hope and follow their stories each different. As parents we don't always have the answers, we are lost, we stumble and then we also learn. As an organization we have learned along the way and we keep moving forward. We have had some great victories with Congenital Diaphragmatic Hernia Awareness Day and educated many and many more are out there to educate. It doesn't end with Resolution 204, it will continue until we can have not only the Senate issue a resolution but the House too - and the President sign it - to make March 31 a day we all celebrate that we raise awareness each and every day.
The quote above also reminds me of the health professionals and researchers who are on the front lines trying to overcome this birth defect. Searching for better treatments, sometimes they are frustrated along the way. Half of their patients die after fight valiant fights. If they fail - they fail while daring greatly. In their failure is also victory. Each and every CDH case gets us one step forward.
Saturday, June 19, 2010
Wishes all Fathers a Happy Father's Day!
When I was a boy of fourteen, my father was so ignorant I could hardly stand to have the old man around. But when I got to be twenty-one, I was astonished at how much he had learned in seven years. ~Mark Twain, "Old Times on the Mississippi" Atlantic Monthly, 1874
Dad, you're someone to look up to no matter how tall I've grown. ~Author Unknown
My father used to play with my brother and me in the yard. Mother would come out and say, "You're tearing up the grass." "We're not raising grass," Dad would reply. "We're raising boys." ~Harmon Killebrew
He didn't tell me how to live; he lived, and let me watch him do it. ~Clarence Budington Kelland
Dad, you're someone to look up to no matter how tall I've grown. ~Author Unknown
My father used to play with my brother and me in the yard. Mother would come out and say, "You're tearing up the grass." "We're not raising grass," Dad would reply. "We're raising boys." ~Harmon Killebrew
He didn't tell me how to live; he lived, and let me watch him do it. ~Clarence Budington Kelland
Wednesday, June 16, 2010
Breath of Hope is listed as a "Circle of Care" Donor
Breath of Hope is an organization that supports Medical Research which will assist in furthering the care of Congenital Diaphragmatic Hernia. We are not medical researchers, we are parents who run a very efficient nonprofit organization. Less than 18% of all revenue is used for Administrative costs. We continue to help support Medical Research and put funds to work to do this.
Wednesday, June 2, 2010
Breath of Hope Named to a List of Top-Rated Nonprofit Organizations
June 2, 2010
Breath of Hope has been named to a new list of top-rated nonprofits by GreatNonprofits, the leading provider of user reviews for nonprofit organizations.
The top-rated Women'e Empowerment nonprofits list is composed of organizations that have received at least ten positive reviews from stakeholders, such as volunteers, donors, or clients. Breath of Hope has received seventeen of reviews to date.
The reviews were posted as part of the Women's Empowerment campaign conducted by GreatNonprofits, in partnership with Guidestar and a coalition of nonprofit organizations. “We are gratified to be able to honor Breath of Hope for its work on congenital diaphragmatic hernia issues,” said Perla Ni, CEO of GreatNonprofits. “They deserve to be recognized for the support they have from their community of stakeholders.”
The entire list of top-rated Women's nonprofits is available at http://greatnonprofits.org/
The campaign was hosted by GreatNonprofits, Guidestar, and a coalition of other nonprofit organizations.
The success of the campaign and the diversity of organizations reviewed reflect the core of GreatNonprofits’ mission to bring visibility, transparency, and accountability to the sector and allow nonprofits to engage with their community in a different way.
All reviews appear on GreatNonprofits.org as well as GuideStar.org, the premiere source for donor research on nonprofits. Nonprofits with 10 or more positive reviews during the campaign are included on the GreatNonprofits Top-Rated Women's Nonprofits list.
Media Contact:
Elizabeth Doyle-Propst
elizabeth@breathofhopeinc.com
888-264-2340
Breath of Hope has been named to a new list of top-rated nonprofits by GreatNonprofits, the leading provider of user reviews for nonprofit organizations.
The top-rated Women'e Empowerment nonprofits list is composed of organizations that have received at least ten positive reviews from stakeholders, such as volunteers, donors, or clients. Breath of Hope has received seventeen of reviews to date.
The reviews were posted as part of the Women's Empowerment campaign conducted by GreatNonprofits, in partnership with Guidestar and a coalition of nonprofit organizations. “We are gratified to be able to honor Breath of Hope for its work on congenital diaphragmatic hernia issues,” said Perla Ni, CEO of GreatNonprofits. “They deserve to be recognized for the support they have from their community of stakeholders.”
The entire list of top-rated Women's nonprofits is available at http://greatnonprofits.org/
About the Campaign
The success of the campaign and the diversity of organizations reviewed reflect the core of GreatNonprofits’ mission to bring visibility, transparency, and accountability to the sector and allow nonprofits to engage with their community in a different way.
All reviews appear on GreatNonprofits.org as well as GuideStar.org, the premiere source for donor research on nonprofits. Nonprofits with 10 or more positive reviews during the campaign are included on the GreatNonprofits Top-Rated Women's Nonprofits list.
Media Contact:
Elizabeth Doyle-Propst
elizabeth@breathofhopeinc.com
888-264-2340
Monday, May 31, 2010
Memorial Day 2010
For love of country they accepted death... ~James A. Garfield
Death leaves a heartache no one can heal, love leaves a memory no one can steal. ~From a headstone in Ireland
The brave die never, though they sleep in dust:
Their courage nerves a thousand living men.
~Minot J. Savage
Their courage nerves a thousand living men.
~Minot J. Savage
And I'm proud to be an American,
where at least I know I'm free.
And I won't forget the men who died,
who gave that right to me.
~Lee Greenwood
where at least I know I'm free.
And I won't forget the men who died,
who gave that right to me.
~Lee Greenwood
Please remember this Memorial Day weekend, with the BBQs, Pool Openings and celebrations - is also a time to remember all those who gave their lives for the freedom we enjoy every day. Freedom comes with a price and many sacrificed their lives. Many families endure separation and many of them need to be honored and respected for their service.
Monday, May 24, 2010
Gigi Hill - Fundraiser for Entire Month of June
One of our fantastic Moms is doing a fundraiser for Breath of Hope for the entire month of June. Fifty percent of all sales will go to Breath of Hope. Great gifts for women - bridal showers, birthdays or just because - or maybe a new spring bag for yourself! Please go here to purchase! If you would like to host a party please feel free to contact Jennifer at jenniferzaranis@gmail.com
Wednesday, May 19, 2010
Jaxson's Jog - Fundraiser in Pennsylvania for CDH
Jaxson's Jog is a 10K & 5K Run plus a 2.5 Mile Walk in Support of Children with Congenital Diaphragmatic Hernia (CDH). Your registration makes a difference! All proceeds benefit Global CDH.
Summary of Race Details:
To make an online donation to Global CDH in the name of Jaxson's Jog, click here.
There are lots of ways to help – sponsor or make an individual donation, register as an individual or a team to run/walk, or make an in-kind donation of food or gift for the Chinese raffle. I hope you will strongly consider supporting the families and children with Congenital Diaphragmatic Hernia by participating in Jaxson’s Jog!
Happy Birthday Jaxson! We hope your day is wonderful!
Summary of Race Details:
- REGISTER online today, click here (note: registration says 1 mile walk, but it is 2 miles)
- Race date: Saturday, May 22, 2010
- Race location: North Park Boat House, Allison Park, PA 15101
- Race day registration from 7:30 am - 9:30 am
- 10K and 5K Race begins at 10 am; walkers follow
- Registration Fee: $20 for adult runners/walkers, $10 for youth (18 or younger)
- Course Info: For 5K course, click here; for 10K course click here
- Hotel: Holiday Inn Pitt North is offering a special rate of $79 - click here for details
- Stick around for the post-race festivities - awards and Chinese raffle
To make an online donation to Global CDH in the name of Jaxson's Jog, click here.
There are lots of ways to help – sponsor or make an individual donation, register as an individual or a team to run/walk, or make an in-kind donation of food or gift for the Chinese raffle. I hope you will strongly consider supporting the families and children with Congenital Diaphragmatic Hernia by participating in Jaxson’s Jog!
Happy Birthday Jaxson! We hope your day is wonderful!
Monday, May 17, 2010
2010 Congenital Diaphragmatic Hernia Summit
Will be in Philadelphia, Pennsylvania from June 23 - June 27. For more details please go to this link with the most complete and up-to-date information - LINK
Sunday, May 9, 2010
Happy Mother's Day
To all mothers - mother's of these amazing children - both the angels and the earthly angels, grandmothers and great-grandmothers out there too!
Being a full-time mother is one of the highest salaried jobs... since the payment is pure love. ~Mildred B. Vermont
Mothers hold their children's hands for a short while, but their hearts forever. ~Author Unknown
Mother love is the fuel that enables a normal human being to do the impossible. ~Marion C. Garretty, quoted in A Little Spoonful of Chicken Soup for the Mother's Soul
A mother's love is patient and forgiving when all others are forsaking, it never fails or falters, even though the heart is breaking ~ Helen Rice
A mother is someone who dreams great dreams for you, but then she lets you chase the dreams you have for yourself and loves you just the same. ~ Unknown
The moment a child is born, the mother is also born. She never existed before. The woman existed, but the mother, never. A mother is something absolutely new. ~ Rajneesh
Being a full-time mother is one of the highest salaried jobs... since the payment is pure love. ~Mildred B. Vermont
Mothers hold their children's hands for a short while, but their hearts forever. ~Author Unknown
Mother love is the fuel that enables a normal human being to do the impossible. ~Marion C. Garretty, quoted in A Little Spoonful of Chicken Soup for the Mother's Soul
A mother's love is patient and forgiving when all others are forsaking, it never fails or falters, even though the heart is breaking ~ Helen Rice
A mother is someone who dreams great dreams for you, but then she lets you chase the dreams you have for yourself and loves you just the same. ~ Unknown
The moment a child is born, the mother is also born. She never existed before. The woman existed, but the mother, never. A mother is something absolutely new. ~ Rajneesh
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